Reeling

Hi,
I am 50 female married with 4 daughters and have just been diagnosed with T2 bladder cancer which is localised. I have managed to stay fairly positive over the last couple of weeks while waiting for diagnosis and then since Friday when actually diagnosed as the initial consultant said he was confident it can be cured and that was the prime piece of information I was clinging on to. Today I saw the surgical consultant and am reeling from all the information received and the reality of how losing my bladder is going to affect my life. He spoke about the options such as having a neo bladder which would involve self catheterisation versus the alternative which would involve a bag for the rest of my life. I cannot see how I can consider a neo bladder as I am really clumsy and very anxious about all things health wise and cannot imagine self catheterising and dealing with the risk of infections and potential further surgery. But on the other hand I am totally freaked out about having an external bag. Has anyone got any experience of either of these solutions?

Thanks for 'listening'.

Nicky

  • Firstly let me say my thoughts are with you. Those 1st months & weeks I would describe as standing in the eye of a hurricane & the only advice I can give is to deal with one thing at a time. My husband was diagnosed 12 months ago but he has to self catheterise for a condition unrelated to his cancer & has done so successfully with no infections for nearly 2 years - try not to worry about that - can you access any support to talk through your concerns, & just take care of you x

  • Thank you for your kind reply Tracey. I am going to make some calls tomorrow re accessing support as I feel I am on an emotional downward spiral. There was talk today about seeing a stoma nurse to have a trial with self caterising but at the moment I am just so stressed I cannot even conceive of that. I have a double slot booked with the consultant next week and he is expecting loads of questions so will try and gather the fortitude to look into it before then. I hope your husband is doing Ok.

     

    Nicky