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Vulval Cancer

Hevs
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Hi I was diagnosed in November 2015 with Vulval  cancer had excision and lymph nodes removed Jan 2016. Last follow up in August revealed lump in lymph  nodes which was removed now waiting for follow up for planned radio therapy wanted to know what to expect  and how to manage the treatment can I still work during this time?

  • Hi Hevs, 

    I'm sorry to hear about your diagnosis but it's great that you are able to have treatment and that the lump in your nymph nodes has been removed. We have some information on our website about radiotherapy for vulval cancer which you can read about here. If you want to find out how to manage the treatment and see if you can still work during this time it may be worth giving our nurses a call. They are specialist cancer nurses and will be able to answer these questions for you. Their number is 0808 800 4040 which is free to call from a UK landline and are available Monday - Friday between 9a.m-5p.m.

    I hope this helps.

    All the best, 

    Steph, Cancer Chat Moderator

  • Offline

    Hi

    Ive just had a cancerous lesion removed 2 weeks ago and now despite me being a Stage 1B im no being asked to have a larger excision and lymph nodes on both sides of my groin removed.

    I hope you are well and coping and if you have time I would love to hear how you have gotten on. Im terrified of lymphoedema.

  • Offline in reply to Cfer

    Hi I had an excision for Vulval cancer three years ago almost now. The outcome now is positove. I did have a small recurrence  in my Lymph nodes after they were removed and that was followed by a session or radiotherapy  (this was after a few weeks quite sore but the hospital staff were second to none and gave me an ointment which pretty much sorted the issues immediateley).

    Since then I have no further problems apart from a slight swelling in my left side groin area called a seroma. I am still pretty active I go to  fit dance classes and also Pilates  I have a dog that I walk.

    I recovered pretty quickly although initially it was quite debilitating n the first couple of weeks  mainly bending down. I have not exerienced any lymphoedema in my legs so that is a blessing. I am now 64. Hope this helps ease your worries.

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