BCG or Neobladder

My dad is a ~50 year old smoker that was diagnosed with Ta high grade bladder cancer on Feburary and had his first TURBT surgery in May. He had his second TURBT at UCS in August and was comfirned to have high grade, T1 and CIS bladder cancer. Apparently even after removing most of his tumors in May,  the surgeon found a lot of tumors in his bladder in August. His doctor suggested that since he's considered young for a cancer patient and his cancer is still at an early (but quickly growing) stage, he should get a neobladder replacement and be done with the disease. He said patients usually react well to BCG treatment at first, but 40% of the patients' cancer would eventually come back and may become much more dangerous. He also said something about only keeping the BCG patients' record for 10 years which makes me feel like BCG would only keep the patients alive for no more than 10 years. 

Needless to say, my dad is very much agaist removing his bladder, but the doctor was very convincing and had us really worried of the potential risk of not replacing his bladder. How risky is it to do BCG in his case? How uncomfortable is it to get a neobladder? 

Lastly, he's very much set in his ways in regards to smoking and despite multiple attempts he couldn't quit, I wouldn't count on him eventually quitting either. How bad is smoking to his disease?

Parents
  • Hi there Impatient, welcome to the forum, but sorry to hear that your Dad has bladder cancer. I am not a medical person, but I do have bladder cancer now for 3 and a half years and I still have my bladder. I am also much older than your Dad. Having said all of that, no two people are the same, but I would certainly advise your Dad to get a second opinion before having his bladder removed. I have high grade as well and I have had several BCG treatments too. Although they are not pleasant for sure, they are a lot less difficult than other treatments for cancer, and I have had chemo and radiation for other cancers unrelated to bladder cancer. Bladder removal is a big surgery but if its' necessary to save his life then of course, he must have the surgery. I would strongly advise your Dad to get that second opinion and if both doctors agree that it should be removed then at least you and he, have made sure that it is absolutely necessary.

    Our good moderator, Lucie, has advised you to speak with the nurses here on the forum and it would be a good idea for you to do that. Good luck to you and your Dad with making the best decision about his bladder cancer. On another note; I also was a long time smoker and I quit cold turkey, not because I had been diagnosed with cancer though. I had quit many years before that. Your Dad would be wise to give up smoking for a lot of good reasons. He is only 50 years old and could have many more years ahead of him once he gets this bladder cancer thing looked after. Smoking won't help him to live longer for sure.

    Take care and I wish your Dad lots of luck whichever choice he makes.

    Lorraine 

Reply
  • Hi there Impatient, welcome to the forum, but sorry to hear that your Dad has bladder cancer. I am not a medical person, but I do have bladder cancer now for 3 and a half years and I still have my bladder. I am also much older than your Dad. Having said all of that, no two people are the same, but I would certainly advise your Dad to get a second opinion before having his bladder removed. I have high grade as well and I have had several BCG treatments too. Although they are not pleasant for sure, they are a lot less difficult than other treatments for cancer, and I have had chemo and radiation for other cancers unrelated to bladder cancer. Bladder removal is a big surgery but if its' necessary to save his life then of course, he must have the surgery. I would strongly advise your Dad to get that second opinion and if both doctors agree that it should be removed then at least you and he, have made sure that it is absolutely necessary.

    Our good moderator, Lucie, has advised you to speak with the nurses here on the forum and it would be a good idea for you to do that. Good luck to you and your Dad with making the best decision about his bladder cancer. On another note; I also was a long time smoker and I quit cold turkey, not because I had been diagnosed with cancer though. I had quit many years before that. Your Dad would be wise to give up smoking for a lot of good reasons. He is only 50 years old and could have many more years ahead of him once he gets this bladder cancer thing looked after. Smoking won't help him to live longer for sure.

    Take care and I wish your Dad lots of luck whichever choice he makes.

    Lorraine 

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