Hi Ruby,

I am really sorry to hear about your partners diagnosis.

My brother, who is in his 30s had a similar experience unfortunately and despite going to to doctor for over a year they were very slow in acting also however after being diagnosed the doctors and nurses at the hospital I think have jumped on it so hopefully you will also have a better experience going forward.

My brothers cancer also spread to the liver but unfortunately  it is inoperable so the plan is to treat it with chemo for as long as possible and hopefully there will be another option available further down the road. Chemo has been difficult for sure but things are looking slightly more positive.

He is doing amazingly and i think he gets alot of strength from his incredible supportive wife and wonderful kids so remember even if you feel helpless just being there through the ups and downs will be so important. 

I hope your meeting on Tuesday brings some positive news and you have a plan in place. 

hello hayley

I hope that all is going well for you on your journey 

i was just searching through these posts seeing if there are people with similar diagnosis and treatment plans as my sister has been put on but further down the road 

how are you finding the folfox treatment ? Has it helped keep you stable 

Hi diane,  just wanted to see how you're getting on now ? Do you still have regular check ups? Are you on any medication? Xx

Hi

I wanted to see how everybody is doing at the moment?

My Dad has had almost 3 x 3 week rounds of chemo tablets (2 weeks on them 1 week rest) and now has his scan soon to check for progress.

I don't think we can expect any miracles at this stage as the tablets only started around 2 months ago. However it things have stalled then that would be a real plus.

Has anyone been through a first scan early on into treatment and any heads up of how quickly chemo can make a difference?

Thanks and take care

Hi

My Dad had his scan after 9 weeks of chemo tablets. We got very encouraging results. His tumour has shrunk by around 25%. 

It's early days but we couldn't have asked for a better reaction to the treatment. The side effects are tough but this has given him a boost.

How are you?

Hello Jamie

I'm so glad to hear your dad has responded well to the chemo, it's great news. I know the side effects can be awful but when you see results it seems to make it more bearable.

Please keep me informed of his progress.

I am very well thank you and I am so lucky that I don't have to take any medication at all, I spoke to my surgeon and he is very pleased with my progress and I now only have to have a scan every year which is brilliant. I'm on top of the world.

Remember, you can do this, keep strong and safe.

Denise

Denise that is really amazing news for you! It gives everyone else hope it can be done. You can now begin to have a normal life without things on your mind like before.

We can only stay hopeful that another 9 weeks of the same medication will continue to shrink the tumour further. The news has given everyone more energy and determination. There is a long road in front but it's as good an update as we could have hoped for. 

Hi Denise, 

I have just commenced this treatment 24/09 /20 and feeling rough I was hoping to have come round a bit by now  side affects around my face but don't last to long but feeling sick even after medication is not good 

   Denise

Hi Denise

I'm so sorry to hear you are feeling unwell, I don't know what treatment you are having at the moment, let me know. I had Oxaliplatin IV on the first day of my chemo cycle and Capecetabine tablets for 3 weeks, then one week off. I had Four cyles from Jan 18 to April and again from Aug 18 to Nov 18. I was told at the time that it was like running a marathon every day. I was also feeling sick, I tried to do a few things in the mornings but was wiped out in the afternoons so just rested and slept when I could. It worked for me so try and stick with it. Keep me informed as to your progress.

Stay positive and strong

Denise

Hi all,

I've now had 3 chemo sessions and go in for my 4th on Wednesday.  By and large the teatment has gone well. They were able to add Panitumumab (Vectibix) into my cocktail for the 2nd and 3rd sessions, which reading up, is a good thing.  No real side effects from the FOLFOX, though i have had some from the Vectibix.  I now have teenage acne again on my face/scalp and parts of my upper torso. Worst bit has been the dry/cracked lips, but hey, i'll take all that if the treament is working.

Anybody else had the dry/craked lips? Any top tips?

Andy