Hi Andy

Thanks for messaging. 

I'm not really a forum poster but reading the messages on here gave me more hope than I had originally imagined.

It turns out that good news can happen and its clear to see from some of the people on here.

Please keep us updated on how things go. Hopefully when you begin the medication, it will begin the fightback. 

Take care

Hi everyone, 

I'm completely new to this but my mum was diagnosed with stage 4 bowel cancer yesterday which the consultant confirmed has spread to her liver. 
 

She has already had an operation to remove part of her bowel wall (she was first admitted with suspected diverticulitis inflammation 4 weeks ago) which was "thickened". The biopsy results then confirmed the news yesterday. 
 

I'm completely in shock (my mum is coping remarkably well!) as I thought it may be bowel cancer but didn't imagine in a million years it could have spread already - she's had no symptoms at all apart from a bit of stomach ache on and off recently.

She's still in hospital recovering from the op but hopefully home in the next couple of days. She has a "collection of fluid" in her stomach which they're trying to shrink with antibiotics before she can come home / have any further treatment. 
 

Terrified and worried about what's to come but reading all your  stories certainly helps to keep positive. I'm an only child and my mum doesn't have a partner so it's just the two of us. 
 

Any advice to help navigate these scary times would be very much appreciated!

Natalie  

Hello Natalie

I am so sorry to hear about your mums diagnosis, if you have read my story I was diagnosed with the same thing in October 2017, I also did not have any symptoms to talk about but I have just had my 2 year scan and it showed no evidence of disease.

Your mum can beat this, I am proof. Please give my best wishes to her and I hope her treatment goes well.

Keep strong you can do this.

Denise

Hi Natalie,

I'm really sorry to hear of your Mum's news.

I was in your situation a few weeks ago after finding out about my Dad. Again, no major symptoms and never in a million years did we think it would have spread.

I thought the worse but after coming on here, it has given me hope. The consultant and their teams will provide really good advice and medication on how to contain this and even possibly shrink as times goes on. You will see how Denise has overcome a similar situation. 

Message here any time and somebody will respond.

Take care

I originally started this post back in 2016 when my husband had the shock diagnosis.

I just wanted to let you all know that 4 years on and after a bowel resection, removal of 2/3 of his liver, and gall bladder removal he is doing very well.

He was also diagnosed with neuroendocrine cancer and that is inoperable but slow growing and he has had radio active treatment and is on monthly injections to slow it down.

A big plus is that he has never given up hope and has remained positive all through this.

Dont give up. Life can still be good . Just wanted to send a positive message to you all.

Hi Linda,

Thank you for your update. You and others on this thread have given me hope.

My parter has just been diagnosed with bowel cancer which has spread to his liver also. He is only 28 and we are incredibly dissapointed and upset at how long it has taken to get a diagnosis as he has been showing symptoms for over a year but was consistently looked over due to his age.

He has his full results and consultation next Tuesday to discuss next steps. I only hope that treatment is an option.

I know the journey will be long and hard but I would do anything to have more years with him

I went in for my first session yesterday; Oxaliplatin, followed by Folfox (in a pump).  All delivered through the PICC line i had installed on Tuesday.  It all went well, and came home with the pump for the first time.

Whilst i was there my cancer nurse came to see me and said that further analysis of my biopsies had shown that my strain hadn't mutated, which meant they could add Panitumumab into my cocktail.  Unfortunately too late for this session, but will be included from now on.  Googling, it seems that this increases the effectiveness of the Oxaliplatin & Folfox, so good news.

So far, touch wood, i have had no side effects.  Managed to sleep with the pump OK last night.  This morning shower was an adventure, but i got through it :-)

A big thank-you to the staff & nurses at my hospital, they are fantastic! 

P.S Forgot to say, I'm 60.

Hi Alex

I am 66 and was diagnosed in October 2017 with stage 4 bowel cancer that had spread to my liver, I had an operation in November 2017 to remove part of my bowel, I then had 4 sessions of chemo from January 2018 to April 2018, I then had two operations one in May and the other in June for a liver resection, I then had a further 4 sessions of chemo until Nov 2019, I was told that it might be incurable and inoperable, however 2 years later, I have just had my scan and it shows no evidence of disease.

This can be beaten, I am proof, please don't give up hope.

I hope all goes well

Denise

Hi Andy

So glad the chemo when well, it's always difficult having the first one as you don't know what to expect, I had Oxaliplatin through my PICC and Hickman Line and Capecetabine tablets for 3 weeks. I hope the rest of your treatment goes well and you don't get many side effects.

I understand about the shower being an adventure, I had the same but you will get into a routine.

Stay strong and keep us posted you are doing so well.

Denise

Hi we are going through this with my Dad, it is possible to cure liver cancer.   It also  can be mantained with treatment if in some cases a full cure doesn't work, so it doesn't grow,  sometimes years,  hope your are all coping ok, there is lots of options, sometimes surgery on liver can remove it all.  It depends on where in liver timour is and size.  Sending lots of love.  There is loads of treatment options .  Xx