Shock diagnosis.Bowel cancer spread to Liver.

My husband of 62 has just been told he has cancer of the bowed which has spread to the liver.

He has had CT and MRI scans and next week goes for. PET scan .

His GP thought he had an ulcer until the colonoscopy showed otherwise so it has come as a great shock. I have read that liver cancer is not curable and he has been told he may be offered chemotherapy.

Has anyone any experience of this type of cancer and what we can expect ? Has anyone survived this for any length of time..?

still sinking in and so many questions.

any help gratefully received.

Thank you

 

 

 

 

  • He obviously has great support from you, he/you can do this. Sending you both positive thoughts. Keep strong !!

  • Hi Lexi,

    Sorry for the late response, i don't check the forum as often as i should. 

    I'm no expert, but in my simplistic engineer's head, they would want to deal with the primary tumour first; the bowel. That's where all the cancer cells originated from. Then they'll focus on the liver.  As you've already said (i found your other posts) it's not spread elsewhere, other than the liver, so that's good.  I know you want it all sorted as quick as possibel, but don't worry, it'll all be going on at your hospital.  They will be analysing all the evidence & when they have a plan they'll get back to you -as soon as they can.

    I had about 4 months of chemo before surgery was even a possibilty.  During that time the tumours in my bowel, liver and lungs shrank to the point that in Feb '21 they were able to operate on my bowel (my primary tumour).  They removed 30cm of my lower bowel and a couple of lymph nodes (not sure how many). I also had an ileostomy, which left me with a bag, which i still have.  My bowel surgery was 'open' surgery, as they said they weren't doing keyhole bowel operations during the COVID pandemic.  As such i ended up with a big wound/scar.  Whilst i healed really well, it took ages (6-8 weeks) to get fully mobile again.  At first i couldn't even get out of bed unaided and waddled about everywhere. I followed their instructions, tried to walk every day, probably only 50 meters at first, but built it up gradually. After 2-3 months they put me back on chemo for 2 months, finishing the planned course.

    There were still some 'indications' in my liver at that point, but they were more worried about my left lung, which they sorted in Oct/Nov 21, removing 1/2 the lung with keyhole surgery.  Quick recovery on that one only two small scars.

    Then they looked at my liver.  Fortunately thay said by that point it was operable.  I had key hole surgery to remove 15% of my liver, not sure about lymph nodes & i can't find anything in the discharge notes.  I was up and about pretty quick though, back in hospital 4 weeks later for surgery on my right lung!

    I remember speaking with my liver consultant & he explained what a marvellous organ it is; as Denise says, it is the only organ in the body that actually regenerates itself.  I was worried about the cancer returning in my liver, but he said that they can repeat the operation & that he'd had one person who'd had it done 4 times.

    Your husband is much younger than me (I'm 62) and has verything to live for. I am a strong believer in the power of positive thought.  It can't cure you, but I'm pretty certain negative thoughts won't help! 

    I hope i've helped in some way, i know you feel a bit lost at first, there is so much to take in.

    Keep strong!

    Andy