Shock diagnosis.Bowel cancer spread to Liver.

My husband of 62 has just been told he has cancer of the bowed which has spread to the liver.

He has had CT and MRI scans and next week goes for. PET scan .

His GP thought he had an ulcer until the colonoscopy showed otherwise so it has come as a great shock. I have read that liver cancer is not curable and he has been told he may be offered chemotherapy.

Has anyone any experience of this type of cancer and what we can expect ? Has anyone survived this for any length of time..?

still sinking in and so many questions.

any help gratefully received.

Thank you

 

 

 

 

  • Hi linda, 

     

    my dad is also 62 with colon cancer spread to his liver. He has had the primary cancer removed and now has a stoma bag, his starts targed chemo and full body chemo on the 23rd of october. 
     

    the liver cancer is a large mass and his been quite poorly but we are remaing as positive as we can be during all this. 
     

    We are too waiting on the pet scan to see if the cancer has spread elsewhere too sinve all his last obs. Its a long cruel waiting game but any help i can be on problems we have come up against and resolutions for them feel free to message me i will try and help where i can xxx

  • Hi All,

     

    My husband has just been diagnosed with Bowel cancer and secondary liver cancer and a few abnormal cells on his lung. They informed him because he was in good health, this will help him with fighting this, he is 63.


    We have been told he will be receiving chemo, that's all we know at this stage. He has his appt with the Oncologist this Friday.

     

    Finding this forum has helped so so much with all your encouraging stories. 
     

    I hope each and every one of you are well and all treatment is going as planned, would love to hear updates. 


    With thanks

     

    Sandra

  • Hi there - I was interested to read your post.  A friend of mine has had a shock diagnosis - cancer in bowel, liver, lung and lymph nodes - is waiting a liver biopsy - why would they do that ? Very worried for them - still in shock

  • Hi Moleman

    Sorry to hear about your friend, it does come as such a shock. I hope you have more answers now and you're friend is receiving treatment. 

    My husband is on his second round of chemo of Oxiliplatin and Capecitibine and is doing really well, a couple of small side effects but he's still able to work, which is so good for his mind!


    How is your friend doing?

  • Thank you so much for replying.  Friend was sue to start chemo this week but it's been delayed a week as not well enough - had stoma fitted a couple of weeks ago and a picc this week think it's just too much for her body - it's stage 4 so not curable up to 18 months 

    just don't know what to say - we have chatted about normal things like kids, pets, the news ! 
     

    am glad to hear your husband is able to work and try and keep mentally sane ! 

  • Good evening Sandra. 
     

    My father went into hospital 14th Nov 2020 (under his local doctors advice) with a bowel obstruction (basically he hadn't passed poo for 3weeks) and the very next day he went into theatre for an 8hr op were they removed a cancerous mass. And fitted him with a Stoma bag. 5 days after the op he was taken back in for another op to correct the stoma bag . He was kept in hospital until his release on the 16th Dec. When he came out he was quite weak because he'd refused to eat the hospitals bland food (with my dad it's a case of 'do u want some chips with that salt?' Lol) 

    once home (he moved in with my mum into her bungalow. They have been separated for over 30yrs but still on great terms. She's a retired carer) his strength built up day by day. He was doing exceptionally well until a couple of weeks ago when he had to go back into hospital for 5 days with pneumonia and a blood clot (due to lying down for long periods of time. So take note, it's best to be in the sitting position when recovering) he came out on the Monday just in time to go for his pet scan on the Tuesday (at another hospital) 

    He has just had the results (Tuesday just gone) the Dr who discussed the results with him asked him lots of questions about his family in general, any previous cancer in the family (out of the entire family, and we're a large family, only my dads dad has passed with lung cancer. So it's not a common hereditary thing thank god). She asked about his day to day living, how mobile he was etc. (To me it seemed like she was gauging if he was a worthy candidate for having the treatment. Like will it be wasted on him. My minds all over the place and I'm hoping I'm completely wrong)  did you have these questions asked aswell? 
    they've told my dad to go back in 4 weeks for yet another scan to see how things are and to see if he's built up enough strength again before they 'think' about giving him chemo. I'm really frustrated as I'm worried there just delaying things and the cancer will spread more. There are 5 areas in the liver that are abnormal. That's all he's been told from the pet scan. Lungs are clear thank god. 
     

    im sorry I've droned on but when I saw that your post was nov 2020 I just had to write as it's the same month/year as my dads diagnosis. I pray for everyone on this chat forum . 
     

    sammy. X

  • Sorry to hear your friend isn't well enough to start the chemo yet. It's an awful worrying time.  Hope she gains the strength to start it ASAP x
     

  • Hi All

    I'm new here and probably not replying to this thread very well, you can probably tell from the time that I'm having a hard time sleeping.

    I am in an utter state of devastation and just needed to open up to people that would understand.

    My wonderful 41 year old husband has just been diagnosed today with bowel cancer and multiple liver mets all over his liver that won't be able to be resected. We have 2 young children of 6 and 7 and I was diagnosed and treated for a rare sarcoma cancer last year and was just turning a corner with my own rehabilitation.

    We have been floored by this news. Everyone we know just keeps saying how unfair this is and how cruel. I've had to spend the evening telling his family in New Zealand  and not being able to be here to support us in the UK.

    I'm not even sure of the point of my post other than to just feel like I'm doing something. I feel lost. All I can think at the moment is that he won't be here in a years time because I kept looking at statistics. This disease is horrible and I am so upset and angry right now. I apologise for my tone that it's not uplifting, I'm just struggling and hurting so much.

  • Hello Sammy

    I am so sorry to hear about your husbands diagnosis.

    I am 66 and this is my story.

    I was diagnosed with bowel cancer in October 2017 I had multiple lesions on my liver and it was also in my lymph nodes. I had a right helicolichomy in Nov 2017, (part of colon removed) then started on my treatment plan and recovery, I had chemo in January 2018 for four months, then two liver operations in May and June, then another four months of chemo until Nov 2018.

    I had a colonoscopy last Dec 2020, I got my results on Christmas Eve, two polyps were removed and there was no evidence of cancer, I take no medication at all and feeling extremely well.

    I just like to tell this to everyone who has had the shock diagnosis (because at the time it is a shock) but I also like to tell it because I am one that knows there is light at the end of the tunnel. I have to say I didn't feel strong all the time but my family and friends were such a support and were amazing all the time.

    I hope that your husband can be treated successfully, especially at this terrible time of the pandemic. I know it's early days but I send all my strength and support to you and your family and please don't hesitate to ask for any help or advice, I will be very happy to try and help answer any questions you may have.

    Be strong and stay safe

    Denise

  • Thank you so much Denise, I needed to hear your story and others like yours.

    How big were your mets and how many of them were there?

    Was there a reason why you had the surgery first? For my husband they are just talking about chemo because the tumour in the bowel is not causing any obstruction. They are concerned about his liver function right now and I'm so worried that the function will get so bad that they won't do the chemo. Was your liver function impaired at all from the mets?

     

    Thank you so much for your reply, it really did mean the world to me and I will cling on to every piece of hope that I can.