Hi Linda. 

How is your husband doing? I really do hope he is well!

My mum was diognosed with stage 4 bowel cancer October 2017. She had just turned 62. It spread to her liver and lungs. 

She had a round of chemo and has had 4 operations so far. 

Not sure what will happen next. 

Lisa xx

Hi Butterfly89

I'm very happy to read your Dad is still with you 18 months after a Stage 4 diagnosis as that is so frightening. What is the name of the cancer medication he is taking?

Best wishes 

Mom1

Hello Everyone,

I was diagnosed Xmas eve with bowel cancer that has spread to my liver. So far that's all I know and when I left the Surgical Emergency Dept. I felt like I'd been handed a death sentence, because all one of the doctors would say was 'it is bad. The fact that it's spread to your liver is bad'.

I've since been for an endoscopy/ biopsy and an MRI of the pelvic and liver areas, however I won't know anything more until later this week.

Its so hard to stay positive when things seem to happen so slowly, but I try and work on the 'no news is good news'. I have an appointment with the oncology doctor on Thursday, when the prognosis is revealed.

I just wanted to say I found this thread very helpful and something to draw positivity from. I wish you all the best and I want to thank you for sharing your stories.

Hi there

so sorry to hear your news but wanted to tell you about my husband.

He was diagnosed in 2016 with bowel cancer with spread to his liver. He had a bowel resection and three months later 60% of his liver was removed.

Although he has since been diagnosed with neuroendacrine cancer which is being treated, he has had the all clear from the bowel cancer.

Try to keep positive , there are a lot of survivors out there and treatment is improving all the time.

Keep positive. Wishing you all the best ,

Hey Linda,

I sorry to hear about your husband. It sounds like the poor guy has been through the mill, but it's genuinely heartwarming to hear he's doing so well, you've definitely given me a boost.

I think the reason I'm so down is the 'not knowing'. I know it's only been three weeks since my diagnosis, but you feel like things are happening so slowly. I'm sure you can relate to that frustration.

Thank you for your kind words. Your husband clearly has a great support system and I'm so grateful you taking the time to share your story and remind me there's reasons to stay positive.

Best wishes 

Thank you so much DeniseJ

Wow, it sounds like you've had a proper fight on your hands! I'm so glad to hear you're doing so well though. I can't tell you what it means to hear someone succeed against such adversity and come out with such a great and positive outlook and more importantly, all clear of this evil disease.

I think I'm struggling so bad at the moment is due to leaving hospital after the diagnosis with such negative news of 'it's spread to your liver, so it's bad'. I think it would be far more beneficial for them to say they don't know enough to make a prognosis and that I should remain positive and see what further tests reveal. 

This thread and the kind words of people like you have really lifted me. I'm trying my best to stay positive but I guess today is just one of those down days.

I wish you all the very best and I will certainly take your advice and dig deep and get positive.

all the very best x

Neil1102

I was also told that my stage 4 cancer was probably incurable and inoperable, so I know exactly what you are going through, I do believe they are obliged to tell you the truth. I am sure they will have their meeting and get back to you as soon as they can with a plan for you. When I got my plan through I felt a lot better because I then knew what was going to happen and I could start on my cancer journey.

Keep me informed as to what is happening and if you need a shoulder or to rant and rave, please just send a message and I will help if I can. I am here is you need me.

Just an idea but when I was diagnosed I kept a diary, every day I would write down how I felt, It helped me and it might be a help to you. And don't forget if you need anything from your family or friends don't be afraid to ask for it.

Very best wishes and keep in touch

DeniseJ

You've really been a comfort to me today and for that, a massive thank you. As you know, sometimes it's difficult to dig deep and the negativity wins, however, I'm so pleased I found this forum and moreover, this thread.

I'm glad you said that about feeling better once you knew what you were facing. I'm sure it'll help me because I'm a bit of a control freak and having everything out of my hands is hard to deal with.

Thanks again. You've been more help than I can express x

Hello again,

One question I would like to ask is, did you find a particular diet helped at all?

Because of where the tumour is, I have to take a softener to make it easier to pass - hence why they diagnosed me as having severe constipation for six months - so I'm wondering if a lot of people have this issue and did certain foods help? Apologies for the pre watershed description.

I'm already on a much lighter diet, like fish, veg etc and I love ramen egg noodles, but can I be helping my situation as far as long term health with particular foods? My appetite is still good, so I want to try and keep in a good eating regime.

I've read you should have a low fibre diet and there's plenty of 'do and do not eat' lists, however I'm wondering if there's any weight to them? Or should I follow the old saying of an little of what you fancy does you good'?

Sorry for such a long winded question. I've done so much scouring of the t'interwebs I'm now more confused than I was when I started.

Best wishes x