Hi Denise

i just wanted to say that reading your post has uplifted me ... my dear friend who is 52 is about to start chemo next Tuesday for Bowel Cancer which has spread to her liver , she will have possibly 6 months chemo then they will operate .. we were all so worried as it has spread to her liver but you have given us hope ... we are all thinking positive 

I hope you continue to do well .. I am myself now 9 years remission from Breast Cancer

thankyou

Debbie

My son in law was 38 when he got the same diagnosis. He survived 8 years he had chemo and then liver resection and did quite well for a while. He has an Iliostomy and then had it reversed   He had a reoccurrence and had a second liver resection .   After some other setbacks it reaccured to the peritoneum so he had Hipec surgery which was rough but he came through   After 71/2 yrs he told us no more and we loist him .   Good luck. Stay positive because we believe this was what helped hm stay with us as long as he did. 

Hi 

Please try not to lose heart, I was also told that my liver cancer may be incurable and inoperable but thank's to the team at my hospital in Leeds I am still here, none of it was easy but it is possible.

Keep that positivity, you can both do this.

Denise

Hi Debbie

Please be positive for your friend, there is so much they can do, I was told that my liver cancer may be inoperable and incurable but I am still here to tell the tale and hopefully to help other through this terrible disease. I wish your friend well very soon and would be interested to know how it goes.

Well done to you for being in remission for 9 years, you have experience of this so I am sure you will be able to help your friend through this and keep positive.

I wish you both well for the future and hope the journey isn't to difficult for you.

Denise

Dear Denise

bless you for your lovely positive comments , you truly are helping others and I will definitely let you know how my friend gets on .... positive polly all the time 

thank you Debbie x

Hi,

I am so grateful to read such possitive news from everyone's experince so far, its such an awful time for everyone but you all seem so possitive :) 

My Mum has been diagnosed with stage 3 NET cancer on her liver which is secondary cancer, she has been told it can not be operated on and she has to have chemo, its secondary cancer and we dont know where the primary is yet.

she started chemo last friday, she also had 2 days at home on etopiside chemo tablets.  Other than being tired she seems ok so far bless her.

There seems to be quite a few different treatments mentioned for liver cancer, does any one else worry that the correct chemo hasnt been specified (even though they are the experts) or am I worrying over nothing?

Lots of love to you all & thank you for the possitive vibes x

Hello, I completely understand how your husband  feesl. In the same week at the end of February my husband was diagnosed with colon cancer and I was diagnosed with breast cancer. Neither of us had symptoms and were both diagnosed via national screening programmes. We were both active people (my husband went on a 15 mile walk a couple of days before his diagnosis). He is inoperable at the moment and his diagnosis has been a terrific blow which he internalises. 

Fast forward to today and our life has changed but we take it a day at a time. Planning trips is not impossible but, as someone else has said, wait as see how your husband copes before planning anything. My husband is also private and hasn't wanted to socialise outside the family. He's having targetted treatment and chemo and has had 6 fortnightly cycles which is really gruelling. He has fatigue and at the moment his treatment is  put on hold until his blood test results improve.  Coping mentally with what this has thrown at us is difficult. I dread seeing his consultant. We had a phone call on Friday to say they were looking at a 3 week old scan and had missed a blood clot on my husband' s lung and he's now injecting himself daily.  I keep thinking we've hit the bottom and then... 

But I am genuinely surprised at the kindness of people. My children are amazing and my grandchildren are fantastic at lifting my spirits. I get sad but it's normal to feel sad when sad things happen, so I'm told. It hasn't got any easier but you just cope. Good luck and best wishes to you and your husband. 

My husband has colon cancer which has spread to his liver. His consultant says he's on the best treatment available but it isn't having the desired effect. I'm worried that he will take him off this and give him something inferior. At the last appointment I asked if there was anything out there that is not funded by NICE which would help the consultant with his treatment plan. We are now being referred to a hospital in London for 2nd opinion on NHS. The consultant said he has every test he needs available to him. The reason I mention this is that I have recently been diagnosed with breast cancer. There is a test to see if I needed chemo but no one told me. I found out by chance from a friend. NICE wouldn't fund the test  and the consultant said it was my choice to decide on chemo as they didn't know if it would be of any benefit. I paid £3000 for the test which my nhs oncologist organised and the result said chemo wouldn't benefit me. Just keep asking.  Best wishes

Hi Linda, 

I was wondering how your husband is doing? I'm so sorry to hear his story and sympathise with your pain and struggles.

My mum was diognosed with stage 4 bowel Cancer in October 2017. She had just turned 62. It had spread to her liver and lung. She had a round of chemo, 6 cycles. It helps shrink the tummor and a few of the lesions. 

She then had an operation to remove the primary tummor from her bowel. She went on to have a liver resection to remove the lesions that had spread there.

She had surgery to remove the deep spread in her lung. 

And also had another operation on her liver to remove more lesions, aswell as her gaul bladder, that was causing infections. 

She is having regular mri scans and ct scans. And it seems they have found more lesions in the lung and liver... But said the scans arent clear. So they might need to do another one. As they aren't sure what they are yet.

Apparently they aren't sure whether the chemo will work next time round and have said they will only use that at the end....!

Not sure what to think anymore. 

She's feeling healthy in herself, active and eating well and doesn't feel poorly at all.

Scared for what else they can/can't do!!!

I really hope your husband is doing OK.

Lisa xx