Hello

not sure I have added the link correctly, but I did a quick search and seems there is a thread with chat and info which might be what you looking for.  Hope it helps

JB

www.cancerresearchuk.org/about-cancer/cancer-chat/thread/lcis-lobular-carcinoma-in-situ#post-213586

Hi there, welcome to the world of confusion and strange medical terms you never know or thought you'd need to understand! The time after the initial diagnosis but before a definitive treatment plan is hell, made all the more difficult when you don't really know exactly what's what. It is so easy to say, and blinking impossible to do, but please try not to search t'internet for all the answers. All it will do is scare you silly and lead you off on tangents which will most likely not be relevant to your particular case. It is not that unusual to be diagnosed with two different types of tumour at the same time (I had Tubular in one side and Lobular in the other)  and treatment is planned to deal with the level of the most troublesome type and therefore more than covers the second lesser type as well. They are graded according to size, location, spread and agression and all this is taken into account when planning your treatment. Every case is looked at individually and tailored to suit your particular needs. 

The MRI is done to check for any possible spread and also to give a clearer picture of what you are dealing with. In a lot of cases, mine included, it just confirms the original diagnosis. I went ahead and had lumpectomies followed by radiotherapy and then hormone therapy after that and am here to tell the tale so please try not to think about the worst case scenario as it will probably never happen.

Try to keep yourself busy (again, much easier said than done I know) and in the meantime I am happy to help if I can with any questions or, if you just want to have a rant, this is a great place to do it! Let us know how you get on, if you would like to.  Take care  Sue xx

Hello Purplejan,

Thank you for posting a question.  Our moderator  wondered if we had any information that might help. I am sorry to learn that you have recently been diagnosed with breast cancer.

You may know that breast cancer most commonly develops in the breast ducts. This is called an invasive ductal cancer. But less commonly it can start in the breast lobes and called an invasive lobular breast cancer.  As you know your pathology report has shown a mixture of both types and this is often called an invasive mammary cancer. This does not usually mean that someone has 2 separate cancers.  This type of cancer tends to occur when the cancerous cells first start to develop at the junction between the breast ducts and the breast lobes.

I don’t think that you will find all that much information specifically about this type of breast cancer. But to be honest I do not think that it would tell you very much anyway. This is because ductal and lobular invasive breast cancers are treated in the same way and they have a similar outlook.

Your treatment will depend on the stage of the cancer. Other things that your medical team will consider is whether or not the cancer is sensitive to  hormones (is oestrogen receptor positive). Some breast cancer cells have a particular type of protein and they are called HER2 positive. If it does have a lot of this protein you may be treated with  the drug Herceptin. Your breast care team will also consider your general health and where possible your treatment preferences.

I am unsure what you have read about lobular breast cancer but many older articles suggest that having this type of cancer can increase the risk of developing another cancer in the other breast. Recent studies suggest that this is not be the case. So I do not think that having the lobular element in your cancer will influence your treatment or how you respond to it.

I hope that this helps a little. If you have any other questions do get back to us. If you would like to telephone our freephone number is 0808 800 4040. We are here from Monday to Friday between the hours of 9am to 5pm.

All the best,

Jean