My Dad has terminal cancer, just diagnosed.

Hello. It's nearly 2am and I'm sitting in bed wide awake, scared and lonely. 

On returning home from abroad 3 days ago (I am cabin crew), I went to my parents house where I was given the news that my Dad has been diagnosed with AML (Acute Myeloid Leukemia). Up until this point I'd never even heard of it. Dad had been undergoing several blood tests in hospital as an outpatient due to fatigue and breathlessness. He recently turned 75. 

He and Mum were given the diagnosis 2 days before my return and my brother, sister and partner knew but understandably didn't want to tell me whilst I was away from home. This caused them a lot of concern and they felt awful that they had this terrible news while I was oblivious to it. 

 The prognosis was that without treatment, Dad may have as little as a few weeks left. Only last month myself and my partner were on holiday with my parents, then this news. I had been up all night flying back to The U.K. so was feeling exhausted anyway, I just couldn't take it in.

At this stage we were unsure if he would eligible for any treatment due to his age and the advance stage of the cancer. Dad insisted he wants quality of life over quantity so would refuse any form of aggressive treatment.

The next day he had an Echo Cardiogram on his heart and an appointment with his Oncloogist, who told him he can have chemotherapy at home (self-inject) and this may give him up to a year longer.

This is being treated as 'good' news and he has been really upbeat as has my family.

Now, I know this may sound selfish or irrational, but I feel that as I had to wait 2 days after the rest of my family to hear about his cancer, I am trying to play catch-up with my emotions and everyone else seems to be in a different place of acceptance (or denial) about this. I can't help it, but it's made me feel a ilittle resentful.

Dad wants us all to carry on as normal as possible, not to treat him any different and enjoy what time and health he has left for as long as that may be. we have always had a very close family and my parents are wonderful people and dearly loved by so many.

I just can't take everything in at the moment. I have spent the last 2 days with Mum and Dad, 2 of their grandchildren, spent time with my brother, my sister is coming over from New Zealand on Wednesday. I have been irritable with my partner and treating him as though he has done something wrong. I cried quite a bit at first but since then have held it together in an effort to be 'strong' and 'normal'.

Dad doesn't look 'ill' at the moment and apart from the tiredness if he does too much, the window on our family life doesn't look any different from what it was a month or year ago! We had a beer earlier, he went to play a couple of holes of golf with friends, he is genuinely enjoying himself.

We've always had a lot of fun and laughter and Dad wants this to continue. I've been trying my best but the whole enormity of the situation keeps hitting me in waves of panic, nausea, anxiety and depression.

He knows he is going to die, he says he's had a good life and doesn't want to drag the end out for our sakes. He has always been a very generous and selfless man and I've suddenly realised how much I love him all too late.

Over the last 24 hours, I have heard myself saying to people "we're going to be OK, we'll cope, we need to be strong for each other and Dad" but what I actually feel contradicts it. At times I have little moments of feeling, 'oh, alright, we can do this, it's going to be OK' shortly followed by 'this is really happening, I can't cope.'

I consider myself quite a strong person, more so as for the last 3 years I have been seeing a wonderful therapist who has helped me with various issues including anxiety, low self-esteem and an unhealthy relationship with alcohol. Earlier in the year I came off anti-depressants and I have never felt more 'together.' I haven't seen her yet since 'the news' and she retires in September.

I'm as equally terrified as whether Dad goes soon or in a year as it just feels like prolonging the death sentence. 

Continued below...

 

  • (Contined)...

    really sorry, spent so much time typing that my iPad had a funny turn so had to post before I had finished.

    That said, apologies for writing so much, there are so many people on here in need of support, I am lucky to have wonderful family and friends and a loving supportive partner, but feel so alone?

    I haven't really told anyone, but I am absolutely terrified of the actual physical act of Dad dying and what it will be like. No one can answer that I know, I am really scared.

    I am supposed to be going back to work Monday, if I don't my roster will be changed and create more stress and uncertainty and my company are notoriously unhelpful with this kind of thing, if you call in sick you don't even speak to someone you know or have a working relationship with. I think I'm ok to go to work but am worried that I will be out of the country in a hotel and have a meltdown. xx

     

  • Hi,

    Sorry to read about your Dad, working abroad has its own problems and one of those is feeling out of touch - or being kept in the dark. We all deal with grieving in different ways  and in different timescales. Not knowing what's going to happen next is one of the biggest frustrations of living with cancer. It sounds like your Dad knows his own mind and will do what feels best for him. Good news that he has the option of home chemo.

    If you are able to take some time off work do so, if not at least let HR know that you're under stress in your home life. The chances are you that you won't function normally and this will result in unusual behaviour - especially when dealing with whinging members of the public or colleagues! 

    Best wishes

    Dave

  • Thanks Dave, you clearly understand what it's like to work with the public!

    I felt better after posting on here last night and reading other people's threads and posts. I have contacted work and despite my misgivings, a very sympathetic manager has given me unpaid leave for my trip tomorrow without affecting my forward roster. This too has made me feel a great sense of relief and some more time to breathe and get my head together.

    Thanks again, best wishes Dean .

  • Hi sorry to hear about your Dad,i was going to suggest asking work for some time off to be available and maybe spend some time with your dad why he's still well enough.

    I know what it's like too I cared for my father on my own 24/7 for 12 months wasn't easy but I give 100% care and devotion to my dad,he was in bed the last few months but we sat chatting laughing reminiscing about the memories and fun we had. I also lost my mum to cancer 30 years ago (I was a kid then) then at the same time I was caring for my dad who was terminal I hit the devastating news that my sister also had terminal cancer aged 42! It was like being kicked while I was already down! I cared for my dad mainly but did go to help my sister as well as well as looking after my 6 yr old daughter it was hard work but I'm glad I did it I was there every step of the way,i made most of the time he had left..

    I now also have been diagnosed in may 2016 with lymphoma and im half way through chemo at the moment..Unlucky yes but it is what it is no point being bitter just got to carry on and fight as best i can...So i do understand and can say I know where you are coming from,its hard but you can do this,stay strong,be there for your dad,smile and be normal as your dad will want that and make the most of the time he has left.

    Work can wait,everything can wait but your time with your dad cannot so spend it with him..

    We are all here to help each other and if you need to talk there are many good people on here who will talk and help you through if you need it anytime..

    Don't be afraid to ask questions there's alot of people been through it or in the same situation as you are right now it helps to share your grief,feelings,worries..

    Wishing you all the best..

    Gill