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Ductal carcinoma in - situ

Holiday
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Hi I'm new to this forum,

My daughter has had a lump in her Brest for a year. She went private and was seen pretty quick, and consultant said it was nothing to worry about, and more or less signed her off, she also made appointment to be seen in public health care in hospital and was 3 months waiting and was told the same, but said they would see her in 6months,

in mean time she said it was getting sore and she said to me I just want it removed, 

she went back to the public hospital to see about having it removed, the doctor sent her for a mama gram and compared it to a previous mama gram and told her to come back in afternoon for a biopsy and said they would call her if serious,

i started to get worried then, but then a letter came to go in on Friday last week, so we didn't worry too much as doctor said he would call if serious,

so she went in on her own and was told she hasductal carcinoma in- situ, when she came home she practically collapsed into my arms she to have a mastectomy she just had an M R I scan, the consultant said he have her in and out in 3 weeks,

I'm devastated it's just too much to take in, she trying to stay strong, my heart is breaking for her, I just wish I could change places, I have reared my children, but she has 2  beautiful children a 2 year old girl and a 4year boy,

i don't know much about this and never heard of it before, has anyone gone through this, I pray that I be strong for her

thanks for reading

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    I had this 13 years ago and am still here ️ ️ ️ I had mastectomy, Ovaries removed and  reconstruction 4 years later I have 3 girls, my youngest was then 7 Be positive it's hard but that's what she needs round her at all times. Stay clear of negative people. I am here if she ever needs to chat xxx

  • Offline in reply to Clothears94

    Thank you so much for taken the time to reply, that's so reassuring.

    can I asked you if it was just one breast, I've so many questions? Like she had an MRI, but they don't seem to be telling her anything. She having an ultra sound on Tuesday, the nurse mentioned the 9th August, but the waiting is killing, how long were you in hospital? What was the recovery time? Did you need counseling?

    why did you have ovaries removed? She had a smear test last year and she had  cin 3 pre cancer cells.

    consultant said she very young to have this, I mean is it older people that get this.

    sorry for all the questions. Thanks

  • Offline in reply to Holiday

    Hi there

    just thought I'd drop a quick reply to you. How is your daughter doing. I was diagnosed at the end of April with 8cm DCIS. I was told at the time that this was the best of the worst news I could get.  I had a right mastectomy with immediate reconstruction at the end of June and I am now almost 7weeks post op. I had what they call a DIEP recon, taking tissue from your abdomen to make my new boob. It's a big op and recovery is slow but it all depends on what type recon your daughter decides on, if at all.  I was mobile when I left hospital after a week, but did need help at home for the first couple of weeks, now I can  make the meals, wander about the house and short walks, even managed a weekly shop today but do get tired easily, again this is due to the type of recon I had, not the DCIS.

    i had never heard of it before and I googled like mad, which in one way prepared me but in another way too much wrong info.  Dcis means it has remained within the ducts and although i had to wait until my final pathology after the mastectomy to confirm this, i don't require any other treatment for the Dcis for which I am grateful, I have a follow up mammogram in a years time.

     

    i hope this is of some help to you and am here if you have any more questions, but as the other response says, keep positive, 

  • Offline in reply to Jaks64
    Hi there Thank you so much, my daughter had 7cm dcis, she had a double mastectomy on the 11th August . She was back today for results, lymph nodes were tested so hasn't gone anywhere. Consultant did say it was 2 months from becoming bad.as he put it.. So scary, She has remained strong, but she didn't want me to go along with her today,I felt a real need to go so I was upset, maybe that's to be expected. I am so relieved that she doesn't need treatment, Taken tissue from her stomach wasn't a option, as she had a c section. Twice. I think they put some inflators in and then I think in 3 to 6 months she has reconstruction then, Did you need counseling? How do you cope,I'm afraid I'm not coping very well. Thanks and very good wishes to you
  • Offline in reply to Holiday
    Hi there It is a scary time, waiting on all the results was the worst. Initially mine measured 8cm in April, by the time I had my mastectomy in June it was 11cm, whether it was not possible to measure it all by scans initially or whether it had grown in those couple of months I don't know. It is a difficult time, on the one hand I am so so grateful that it was Dcis and had not become invasive, on the other hand every new ache and pain I get I keep thinking is that something now. I had my smear test last week and I am scared stiff of the results. All these feelings I am sure are normal. I have my good days but also my bad days. I too feel I could have benefited from someone to speak to but this has not been offered. I am sure if I telephoned the cancer nurses they could put me in touch with someone but I just try to to think this is a blip in my life and I will and can get back to 'normal' life, easier said than done. I have had messages from a couple of people locally. One lady went through this 9 years ago and is doing very well. Another lady had a single mastectomy in the late 90s, not sure what type she had but she is doing well too. So I try to think if they can do it, why can't I be ok too. It's good your daughter is strong, I was too on the outside but crumbled when at home. You will find strength from her too and be strong for her. I'm not much good with words of support but if you need to chat, I am here. I am10 weeks post op now and can almost so everything I used to. I get the odd twinge if I stretch too far. It's just getting my head around things now, but I am trying to get there, keep busy. Jackie x

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