Hello tallaght,

Welcome to Cancer Chat. I am sorry to hear about your daughter and it's good the referrals have now been made. I hope you will get to talk to others here who have been through a similar experience.

If you live in the UK, our nurses may also be able to answer some of your questions so don't hesitate to give them a call on this free number 0808 800 4040, Monday to Friday 9am to 5pm.

Our very best wishes to you and your daughter. We hope all goes well for her. Do keep us updated!

Lucie, Cancer Chat Moderator

Thank you for your response. I will pass the number onto my daughter - I am so grateful

We have had blood results today that have shown elevated levels of CA125. We have been told by the practice nurse that this in no way means she has ovarian cancer, however, its hard not to worry. We have an appointment with the consultan gynaecologist next Thursday which is exactly 2 weeks since the rapid referral. 

Hopefully we will get more information then.

Hi Everyone,

Mudaughter had her appointment with the consultant gynaecoloigist today and we came away very annoyed and frustrated. The blood results had not been forwarded and he asked us what the ca125 level was and when we told him he said maybe we had got confused as some people do when told numbers, he said it was unlikely a girl of 26 would have ovarian cancer. We were sent to the maternity department for a repeat blood test. He also said the mass was 6cm and I had to correct him and tell him it was 14cm. He then said he would see her again in 4 weeks - I nearly fell off my chair !! After a full and frank discussion (as he clearly had not read the report from the scan we had ) he agreed to refer for urgent CT scan which will be at least 2 weeks and he has agreed to see her in 2 weeks time. I asked if it would speed thigs up if we paid for a CT scan, he said that was up to us but there was a process to go through and we would have to understand things take time - his words were even if this is cancer things do not happen overnight ! 

Hello and Im so very sorry this is happening to you. I am in a very similar position and very frightened and very frustrated by the delays but keep being told there are no clinics. as you have had a clinic appointment, I would ring the consultants secretary, explain the seriousness and ask for an urgent mri scan. I had to do this for my mum who I lost ti a different cancer nearly 3 years ago, it may not have saved her and the delays were insane but t least you will feel better for trying, good luck x

How frustrating for you all.  At times the NHS is very frustrating. Personally I would pay and go private, as that's the kind of person I am. I need to know that I done everything in my power to obtain the best possible outcomes based upon the information I have to hand. If that means fast tracking your daughter by paying then so be it. Every day, week, month count if it's something nasty.  My sister had an ovarian cyst removed from her ovary when she was young and it was dealt with very quickly fortunately. It's embarassing to think a specialist can sit there in front of you without going through the case properly first. It installs no faith in at all. Good luck x

Thank you for your response. Completely out of the blue we had a call from the hospital today with an appointment for a CT scan on Monday afternoon. Whilst I am over the moon that there appears to be a complete u turn in the response from the consultant I am now worried that the repeat bloods that they did yesterday have shown something to be worried about. On the plus side when we go back in 2 weeks we should have the CT results, the second blood result and the second pelvic scan result.

I will let you know how things go

Good luck for Monday then. Maybe the consultant just doesn't know as much as he should...

Hi there Tallaght, I just read your latest post and I would guess that your daughter's consultant is running scared that this situation has taken much longer than it should have. I'm glad that they are now moving on this though and honestly, even when they know for sure that some one does indeed have cancer, they still don't get things done very fast anyway. Your daughter does have her youth in her favor though, so here's to keeping fingers crossed for a good outcome on the scan.

Just as an aside though, we here in Canada, don't have the option of paying privately for these services, unless one decides to go across the border to the United States.

Be sure to come back on here and let us know how things work out. All the best for your daughter.

Lorraine