Hi Gillian, I can tell from the sad emotican that the news wasn't good. I'm so sorry to hear that. It really is a downer to get those results. I wish there was something I could say, but there really isn't. I will say though that those of us diagnosed with this terrible disease have experienced the same or similar feelings on getting that news. I know that right now you are likely just trying to process this and likely haven't gone beyond that point as yet. When you do get your bearings, come on here and let us know how you are and how you're coping. This is where you can "talk" about those feelings and know that we understand. I wish the outcome could have been better for you.
I am absolutely gutted,I kept up hope that it wasn't lymphoma but the raw facts hit me when he told me yesterday wow I am mixed up, confused, scared all sorts of feelings.
The worst thing was I told my daughter yesterday in a positive way I could and it broke her heart and mine that's been hardest thing of all as we have lost all my family to cancers, no parents,lost my sister age 42,my girl has only got me. Life is so cruel. I feel angry at the moment sorry for ranting on here..
I go for a bone marrow biopsy tomoro then start chemotherapy next week!
I have Follicular Lymphoma, stage 3 that is all I'm aware of. I'm dreading that bone biopsy ID rather take the groin node biopsy again instead of bone yuck
Anyway thank you for taking time to read all this and for your reply I am grateful.
I'm so sorry for your biopsy result. I am also waiting for biopsy results on a hard mass I had removed from my forehead. It will be three weeks Monday since my excision and still no result. They said my lump was very rare and they've had to send it off for further tests, but the waiting is horrendous. I went private as well.
I hope your bone biopsy goes okay and you start your treatment soon. At least you can now focus on getting well again. I'm so sorry the results came back showing a lymphoma. You must be going through a whole wave of emotions.
Hi Laura,I hope you get your results soon! Keep phoning push them along a bit. I did but 3 weeks feels like 3 months when you are waiting it's awful.I felt relieved when I finally got answers, I know it sounds a bit daft but the stress I had for weeks just lifted once I was told what it was,it was then I could say right so what are we going to do about it? I'm a do er,action plan type of woman.
The BONE biopsy was not nice it was worse than I expected, I shouted out once at the peak of it which is not like me at all and I'm struggling at the moment to walk especially upstairs,it's like having a broken hip, I can't sleep and I haven't eaten today it's knocked me off alot this but hopefully I will feel a bit better tomoro?
I start treatment in weds & Thurs...
Good luck with your results, I hope it is nothing.
