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Adenoid Cystic Carcinoma

HelenP
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Hi All,

Just looking for a little advice. My hubby has had his op to remove saliva glands and other glands.  He is due to start a 30 day course of radiotherapy in a couple of weeks. I have been told that this will effect his eating, speech ect.... so we have a meeting with the pre treatment team before he starts his radiotherapy.

Has anyone else gone or going through the same treatment who can give me some advice of what to expect. I am finding the unknown hard to deal with at the moment.

Thank you :):)

  • Offline in reply to Nneb

    Hi

     

    hope your ok, always worse for the partner, I think.

     

    I don't know much about the notch gene but they are doing research and drug trials in Manchester at the moment.  I have been tested for it but don't have it.  A lady called Ruth who has ACC is from what I read the go to!, she's on here or Macmillan site.

    I wasn't getting scans or any information so I asked for a second opinion.

    thinking of you

    take care in these terrible times

    Shirley

  • Offline in reply to ShirleyF

    Thankyou Shirley, I hope your doing ok too. Yes my husband was prime candidate for Mr Metcalf in Manchester but it's been 18month and no evidence of return and they contacted us yesterday to say the trials are coming to an end. Obviously it's great news the cancer hasn't returned and we are hopeful of other trials. Just praying the symptoms he's getting are nothing todo with its return  
    I always said my husband was one in a million so we joke about his statistics and say we didn't expect anything else.  
    kind Regards

    NNEB

  • Offline in reply to Nneb

    Yes, all good here, three years with no return!! 
     

    good luck with all the tests

    take care and keep positive 

    Shirley

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