Hello Karla,

A big welcome to Cancer Chat. I am sorry to hear you are finding it difficult to find information on this very rare form of lymphoma. I just wanted to let you know I have asked our knowledgeable nurses to respond to you as they may have some useful information to share with you on this type of lymphoma. It may take them a few days though to post a reply. If you live in the UK, feel free to ring them Monday to Friday 9am to 5pm on this free number 0808 800 4040. 

I hope you will get to talk to others here who have also been diagnosed with this specific rare lymphoma.

Best wishes to you and your husband,

Lucie, Cancer Chat Moderator

Hello Karla,

A big welcome to Cancer Chat. I am sorry to hear you are finding it difficult to find information on this very rare form of lymphoma. I just wanted to let you know I have asked our knowledgeable nurses to respond to you as they may have some useful information to share with you on this type of lymphoma. It may take them a few days though to post a reply. If you live in the UK, feel free to ring them Monday to Friday 9am to 5pm on this free number 0808 800 4040. 

I hope you will get to talk to others here who have also been diagnosed with this specific rare lymphoma.

Best wishes to you and your husband,

Lucie, Cancer Chat Moderator