Newly diagnosed DCIS

I have just been diagnosed, trying to stay positive as they say once I've had mastectomy I can 'close the door on them'. No mention of removal of lymph nodes but concerned it may be worse news once mastectomy done.  I'm a bit of a wimp (and I google far too much) 

  • Thanks Joanne

    yes, the main thing is getting through this step by step, good to know you're on a clinical trial, I was starting to think I was an experiment, I'm blaming the anaesthetic for my thoughts

    The text I sent my husband to say I was back from theatre made absolutely no sense at all, even I could not figure out what I was trying to say!! (and I used to be a secretary, lol)

    x

  • If you end having to have chemo I really hope you don't end up with 'chemo brain' then! Ha, ha! It's a nightmare!!! A funny one though so please don't be put off.

    I can't remember days and conversations and constantly scribble things down on paper to remind me of things....only to lose the paper! My husband thinks it's hilarious! He told me Trevor Macdonald was 100 years old the other day and I believed him. Even convinced me that the French had bred a chicken to hunt out truffles!!! He's loving it! Thank God for Google as I check everything now. Ha, ha!

    Wishing you a speedy recovery and please let us know how things are going. We're always here and hope the results come back all smiley with hearts and fairy dust on! xxx

  • Hi Joanne

    How are you doing.  I love your last line, results with smiley, hearts and fairy dust.  I will remember that.  It must have worked for my nodes, they came back clear, so thankful.  They sent me for a CT angiogram last week prior to the elusive surgery.  Still no date for that.  Every appt Ive been to they said the next time i come in they will have a date for me.  Telephoned the nurse today as this has been going on since mammogram in Feb.  Apparently plastic surgeon off sick due to injury and no date in forseeable future, I am going crazy waiting on surgery;. I'm even considering no reconstruction if that will speed things up.

    Anyway rant over, hope you  are continuing to do well.

    Thanks for listening

    Jackie x

  • I knew the fairy dust would work! It's fabulous stuff and the fairies live in a tree in my garden. That's what I've told all the kids that visit anyway since I stuck loads of fairy doors to a tree trunk. If the kids are good they have presents left there and if they are naughty they get nothing! Bribery works a treat!!! Tee, hee!

    Anyway, Back to the serious stuff..... I'm gutted to hear of your delay. I know the waiting is horrendous but I promise you it gets better once you are well and truly in the system. You get a little more control and order back in your life and can start planning for things. Unfortunately the NHS are pushed to breaking point with cut backs but that doesn't make things any easier for those waiting. I was very lucky in that I knew I had cancer before diagnosis. Even the guy who performed the biopsy try to reassure me that everything would be ok since my tumour was text book! I was just dreading the chemotherapy and that was what I was more upset about. I hate being ill and do not make for an easy patient!!! I had only just married my childhood sweetheart and was scared he would divorce me since I'm a COW when I'm ill. He hasn't and still loves me so all is good in the world. Phew!

    Met my Oncologist last week and she has reassured me that all the cancer has gone and as long as I can remain in early menopause with medication I should be fine. Hoorah!!! No children for me and hubby but I have gone out and bought 6 chickens instead! See!!! Always a positive out of a negative and we'll be having very fresh eggs once they start laying in October. ;)

    To be truthful I would wait for reconstruction if they can assure you it will speed things up. Just get that nasty cancer out!! You can always go back to the plastic surgeon but the mind runs away with all kinds of rubbish waiting for the cancer to be gotten rid of. I really hope your appointment comes through soon! How rude of the surgeon injure himself with you waiting on his list!

    Please let me know how you are getting on as lovely to hear from you. I'll just send you a friend request thingy me jig so if you need to chat I'll know you've messaged and I can reply quicker.

    Keep your rant attitude going as it is good for the soul and better out than in. Always here.............. Joanne xxx