My mum has rare bladder cancer

My mum ( age 65) was admitted to hospital on 28th december 2015.... i went in the ambulance with her... after 10 weeks on battling sepsis infection she was told she has Squamous cell bladder cancer.. the aurgeons tried to remove the bladder but i was called back to the ward to be told it had already spread and fused to her pelvis and spread to her utirus and cervix.... my mum has M.S so it makes things harder to cope with....  she has been at St Wfrids hospice for 4 weeks and has lost 2 stone... ( she is now 7 stone)... as a family we were never prepared for this, or to be told she will die in a matter of weeks.... she has wounds that dont heal and the tuma is fungating.. which means the smell is almost unbearable and i cant eat meat or even bear to be around anyone that is eating meat???! Ia this normal??  Im also feeling that only my sister understands and i cant tolerate listening or talking to anyone that i feel cant relate to me... its just heartbraking watching her fade and become more confused. 

  • Hi there Pip, I'm so sorry to hear about your Mom having this cancer, and for you having to suffer right along with her. Having had to deal with MS likely for a long time too, and then having to contend with cancer is absolutely terrible. I wish there was something I could say to make this easier for you, but I can't. What is her treatment team saying about her condition? Are they offering treatment, or paliative care at this point? i know that this must be so hard on you and your sister and I'm glad that you have each other to lean on at such a difficult time. It might help to request a meeting for you and your sister with the treatment team and perhaps get some answers as to the best way to deal with this situation.

    I hope things get worked out for you very soon. Take care and come back on to the forum any time you want to vent or just write about your concerns. It does help to unload them.

    Sending hugs to you and your sister.

    Lorraine