Mum with terminal cancer

Finding this all so hard to cope with. My mum was ill back in October. She went to the doctors and they did tests that dismissed the fact it was cancer. Repeatedly mum went back to the doctors and again couldnt find what was wrong. 4 weeks ago mum went to a&e as she could no longer deal with the pain. 

A scan was done and a mass was found in the stomach. The tumour (cultures) were grown and we waited 10 days for the results. On Thursday we were given the devastating results that the cancer had spread. It's now in the liver, kidneys and across the stomach. Terminal cancer! 

Mum had a drain and had 5 litres of fluid drained last week. The drain stopped working and another one out in today. 4 litres has been taken. I'm hoping this will ease the distress she is in.  

This is all so very hard to cope with- My mum is our world. A person that looks after everyone but herself. My dad is distraught. The thought of living without mum is unbearable. 

Any one else gone through this or going through this? 

  • Hi Sophia

    The fluid is called ascites there's more information about it and what causes it here www.cancerresearchuk.org/.../about-fluid-in-abdomen

    When my wife was first diagnosed with her cancer she had an awful struggle with ascites. Like your mother she had many litres drained. The doctors didn't want to drain too much as they were worried it would drop her blood pressure too much but the rate of production was so high. Sounds like your mother has a similar problem. Towards the end it even fot into her chest cavity and she had a pleural effusion which is pretty dangerous and had to have that drained - much more painful.

    The good news is that it got under control when they got her well enough to start chemotherapy. The chemo stopped the ascites and it never came back significantly.

    Now stomach cancer is nasty there's no denying that and the majority of people dignosed are like your mother diagnosed only after it has spread. There are an awful lot of people like me who have stomach issues after 40 or so it's really common and spotting those with cancer or pre-cancer is really hard.

    Thing is that whilst the ascites could be a threat to her right now she's still treatable and a bit under half of the people with stomach make a year and 20% or so do better than 5 years. It all depends on how well she responds to treatment. There are people on htis forum who have been fighting "terminal" diagnoses for many years.

    So don't think terminal yet - that's normally when someone has stopped responding to treatment and has only a short time left - think incurable.

    Focus on getting the ascites under control and stopping the spread of the cancer and then focus on spending the time you have left with your mother wisely and well. Right now she'll be worried to death about her condition but moreover she'll be worried about you - show her how well you can cope without her.

    After my wife's first round of chemo we managed an exotic holiday and those are some of my most treasured memories. Now you may not be quite so lucky but remember its not the number of days it's what you get to do in them that counts