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Loops5
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Hi I was diagnosed April 2015 with Lynch syndrome which was a shock but least I knew I would be checked but never thought I would be ill but on Christmas Eve 2015 I was diagnosed with kidney cancer, it's only by luck this was found as I was feeling ill and had a reaction to antibiotics, so GP sent me to hospital. They done ultrasound other scans, bloods etc I was in hospital until end of January  ( operation 21st) which had to be done in different hospital as they said it was a complicated procedure.  I am on fragmin injections due to a clot I have in legs as one leg was over 2 stone due to fluid & where cancer was. I have had lots of blood tests & had my CT scan so now waiting to find out if it's all gone or somewhere else in body or if I need chemo...my husband is struggling to get his head round it all as I am, it doesn't feel real, even thou I have had operation it's been all a blur. I am so scared of what's to come but I am staying postive that I will beat this but sometimes my mind over thinks...

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    Hi Loops

    Must be pretty scarey and as you say difficult to get your head around. Sounds as if you're waiting for that did you get it all conversation.

    For what its worth someone on here a while ago was saying that their consultant had said that if you had to have cancer then kidney cancer would probably be the least worst option and the figures for it are pretty damn good compared to many. Add in the fact that it sounds as if it was caught early and I think you've every reason to be optimistic.

    Hope your leg's more comfortable now - when do you find out? I would have thought it would be soon if your operation was 6 weeks ago.

    Crossing our fingers for you

  • Offline in reply to GrahamM

    Hi thank you for your response, I sure hope it was caught early, they said in hospital been there awhile but I didn't have symptoms until Xmas eve just gone. They said I was a unique case!? So that got mind mind racing but also this is the best I have felt in years, just tired getting over surgery but walking little more each day. I am in the waiting for did you get it all bit aaahhh but fingers crossed but whatever they say I will be positive. My legs have reduced well and I can move round better. My other concern is when friends ask how I am doing but I don't tell them just say I'm ok as I don't think they really want to here how I am, so I play happy...if you get me

  • Offline in reply to Loops5

    Well you can always come on here and tell people how you are - there are loads of people who are going through similar.

    Thing is everybody loves a survivor story - there are so many people who come on here with late diagnoses and limited options.

    Wouldn't you love to hear from people right now who have been where you are and got that all clear?

    If you get that good news will you stick around a while and find people just diagnosed and tell them your story? 

     

     

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