Chemotherapy

I have been diagnosed with non Hodgkin's lymphoma. I am 81 years old and have been told I can have chemo,I have agreed because I think we should give this nasty cancer a kick up the backside.its seven years since we lost our youngest daughter to lymphoma and the pain is still raw.what do you think.

  • Hi Jeannie, I hope that you are managing to get some decent sleep this evening- I am not, but as this is the norm for me, I am used to it!  

    Take care and hope to catch up soon. X

  • Fine with chemo and steroids but after I stopped taking them I have been in hospital 4days.I was dehydrated and my levels had gone down,don't remember much about it.after being on a drip I am now home feeling much better my next chemo is on Tuesday so fingers crossed..b

  • Oh sorry to hear that

    Look after yourself and get plenty of rest, my wife used to make a big batch of chicken soup during chemo I don't know if it helped or whether it was just her Jewish genes coming out

    Good luck for Tuesday

  • Yes, look after yourself.

    My neutrophils are down at 0.4 but have not been offered an injection of G-CSF - just told to take antibiotics. My hair has started to fall out and I am finding this stage to be quite difficult.

    Good luck for Tuesday - I will be thinking of you. X

  • Had the chemo successfully yesterday feeling tired and my scalp is really sore.I will be having injections to bring blood levels up.have been told they cause pain bones and hips so something else to look forward too.anyway enough of me I hope you all doing really well with your treatments and not feeling too ill keep strong and hope for the best

  • Hi Jennie

    Just wanted to say I hope all is going well I've been following this thread but not yet commented.

    I'm having the G-CSF injections I find them easy to administer and painless.Yes they do make your bones ache a bit..mostly find its my lower back and down my legs.I take a paracetamol and it goes off its not too much of a problem.I always see it as a sign my levels are rising. 

    Take care Ness x 

  • Hi Graham I hope you and your wife are doing well I am OK at the moment having injections this time to bring the levels up Thinking of you both my way of handling this is don't get sad get mad.love to you both

  • Hi Jeannie P,

    I Hope that you are doing okay ater chemo 2 and have not been too sick/tired.

    Fortunately my neutrophils went back up to 5.5 so I was able to go ahead with my second cycle of treatment on Wednesday as planned. I did not receive any injections but it has been suggested that I may do so with my second set of treatement (3 x Docetaxel). I have been fine apart from a dry mouth and am now looking forward to a few days away with my husband and our lovely son - he is a dote.

    Anyway, I hope that you have a lovely Easter. X

  • Hi Jeannie

    I'm afraid my wife lost her battle with her cancer back in October but I still hang around and offer a bit of advice where I can (Stick my nose in she'd probably have said)

    Are you getting daily injections?

    Mel was fortunate enough to have private cover for most of her time from my company insurance policy. One benefit of this was that the consultant would always prescribe neulasta (pegfilgrastim) to make sure her neutraphils were kept high. It is quite expensive about £650 a shot. In the UK NICE tells doctors they have to use a cheaper alternative called GCSFs which do exactly the same thing and are as good but you have to have them daily and cost about £50

    In limited situations UK conultants can prescribe Neulasta if someone has a needle phobia or cannot administer due to dexterity issues and their relatives cant and there's no district nurse or if the patient is young and may not reliably self administer

    For anybody interested the guidelines are here:

    www.google.co.uk/url

     

    Now an interesting thing here about the UK and US health systems - checkout these two websites

    UK cost £650

    www.evidence.nhs.uk/.../neulasta

    US Cost

    www.drugs.com/.../neulasta

    $5,400

    Isn't that interesting?

  • Hi Graham I read your post yesterday and felt so bad .I had not realised you had lost your lovely wife it was a case of foot in mouth again for me.I think you must be a lovely positive man to try helping other people when I lost my lovely daughter we found that talking about her and the way she made everyone smile was a comfort.she was no longer in pain and that was a relief.keep smiling Jeannie P