Dad just diagnosed with non small cell lung cancer

I'm really new to all this chat room stuff but have been told by many that it may help me deal with things, basically my dad has just been diagnosed with non small cell lung cancer! We have been told that unfortunately due to the position of the tumor the doctors can't operate , and have been told they can't cure his cancer! He will however soon be starting a treatment programme of chemo and radiotherapy, iv been doing research on it as we weren't really told what stage he is at or any real prognosis, , all we know is that the fluid he had drained did not contain cancer cells but in the same breath it has gone to his chest wall, just trying to make sense of this horrible situation!!! 

  • Hi Yvonne

    my mum was diagnosed same thing in Sept she started chemo straight away had six lots in total finished two week ago.  Shrunk it right down after four sessions.  Got CT scan Sunday. Fingers crossed.

    Started brain radiotherapy Monday got to have ten sessions one a day monday-Friday.  Got five to go. 

    She is 74 and was amazing through chemo no problem at all managed to do her normal day to day things going out and about. 

    Was abit off tonight with terrible acid reflux which I've read can be casused by coming off the chemo.

    I wish your dad all the best and hope he gets through the chemo without to many problems. Chemo works very well with small cell aggressive so fingers crossed. 

     

     

     

     

  • Ah wow that's really great news about your mum, really pleased for you all that she responded so well and coped with it all! It really is great to hear all these positive stories, it gives so much hope for my dad! I wish your mum all the best with the rest of her treatment xx 

  • Hi hun

    Mum went for her second week of radiotherapy but doc called her in for chat first.  Told her cancer was back looks like last two sessions of chemo didn't work and the cancer is back.  Problem with small cell is its aggressive give her 4-12 week

    She is on week five tomorrow and is absolutely fine in her self still so just making the most of her time left x 

     

  • Oh no that's awful, my thoughts go out to u all!! Hopefully she will stay well for a while longer and u all get to enjoy as much time as possible with your mum! 

    Sending love to u all 

    Yvonne ️xxx 

  • Hi so sad reading everyone's stories my mum was diagnosed with lung cancer just 2days before my dad's funeral on the 5th March all we have been told is she has lung cancer and its in her lymph nodes aswell.Mum is 81they said she is too fragile to be operated on,and her age is against her,they also said she is too weak to have a biopsy and its world be too stressful for her.  And mum don't want chemotherapy not that they offered it.  I don't know what stage we are at the Dr says he doesn't need to keep an eye on her and see her own Dr or palliative care.:/  Mum had a brain scan they said no cancer there but she has swollen lesions.  I don't know what I'm ment to do  it just feels I'm on a time bomb,how am I expected to know how long mum has. I wish everyone all the luck in the world,this is such a tuff road.xx

  • Hi Sath,

    I'm really sorry to hear that and no it doesn't sound good.

    You can read about staging here www.cancerresearchuk.org/.../lung-cancer-staging from your description it sounds to be at least stage 3.

    While about 50% survive a year with stage 3 lung cancer most of them will be responding to treatment and the fact that your mother isn't going for chemo and is frail is going to bring things to a head relatively quickly I'd think.

    I had an uncle in his 70s who developed lung cancer - he was quite a religious man and I think was actually looking forward to passing on. He refused treatment apert from pain killers and I think was only really a few weeks before he died.

    It could be longer but often people will pick up an infection and be unable to shake it and it can go downhill quite fast especially if they don't have much desire to carry on.

    Yes it's really tough - must be especially tough for you losing one parent and then another so quickly.

    Phone McMillan (www.mcmillan.org.uk) they can offer advice about getting palliative care sorted out otherwise she could start getting into pain. Talk to them about hospice care too unless you're planning to nurse her through her final days - and with your father's recent death, with all due respect, you're unlikely to be up to it.

    Good luck do your best to make her last time as comfortable and easy as possible

  • Hi thanks  Graham, that's what i was thinking, and. I do hope (sound wrong)it is quick for her.

    When we went to hospital weds.the Dr said it looks like early stage but obviously he can't say can he if no biopsy. She doesn't seem to be able to walk properly she shuffles. I think she has dementia aswell but she also has funny turns where she shakes her hands and her head goes sometimes and her talking is just jabbering. She get pain in her right shoulder now and the and in the middle of her chest which she says is indigestion.when we go to the hospital she tells the doctor she never has any pain and her breathing is ok which it isn't she is breathless.

    I don't intend having mum at home in the final stages because I still have young children in the house and don't want them to see all that. Plus the very reason you have said losing my dad has had a big impact on all of us an  I really haven't had time to grieve yet. I sit and look at mum and think it could be a long time before she gets really bad but then other days I don't no. She sleeps most of the day. And gets up in the night  about 7/8 time to go to the toilet. Plus without a biopsy how can the Dr tell how fast it will grow/ spread although he said its in her lymph nodes, he hasn't said if it is anywhere else. So I'm thinking it could be any where....

  • I have been reading everyones post and all your stories and advice is so relevant to me! My Papa (grandfather) was diagnosed last month with lung cancer. He was initially told back in March that it was asbestosis and then after CT scans and bronchoscopies they found out it was cancer. I'm a Nurse so I knew from the start what it was but didn't want to believe it until I heard it from the consultants mouth. He ended up having 2 bronchoscopies as the first didn't show what cancer it was as the samples were damaged. He then had a PET scan where we recieved fantastic news that it hadn't spread to his lymph nodes and he hadn't any secondary cancers/metastasis, so his staging was T3 N0 M0 but I'm not entirely sure what stage this is overall. I was thinking he was quite early on despite the size of the tumour but since seeing his respiratory consultant  after his PET scan he then saw his surgeon as it was advised they would be able to remove the upper lobe of his left lung where the tumour was. The surgeon has since said they won't be able to operate, this is due to his age, hes 80 in August, but a very young looking 80 year old! He had a tiny stroke 10 years ago and last year he had his abdomial aortic aneurysm repaired, which was major surgery. We then recieved a phonecall on Friday night to say he may operate but he wouldn't do a lobectomy or neumonectomy as the risks were too high and he would do something else...however I don't know what that is as I wasn't at the appointment and I'm getting everything second hand. He has another bronchoscopy tomorrow and he had a CT scan yesterday and he is seeing his oncologist for the first time on Monday.

    Iwould like to know of a support group or meeting place for him to discuss the option of treatment with someone similar to him, could any one advise?

     

    Thank you all xx