Hello Laura,

How nice of you to offer to help and to share your experience with others who may be in the same situation today that you were in three years ago. I am sure they would love to hear about your experiences.

As you say, it does help enormously to talk to someone who has also been through the same experience as it makes one feel less alone. I will definitely think of you when someone with cervical cancer posts on the forum and I will make sure to point them in your direction!

How have things been for you three years on?

Best wishes,

Lucie, Cancer Chat Moderator

Hello Lucie -

I have been well these past three years.  I came across this site and signed up because I understand the fear, being over-whelmed and just numb when confronted with a cancer diagnosis.  I want people to know that they can get through chemo, radiation and all the side effects.  I wish I would have had someone like that when I went through diagnosis and treatment.

Please do send anyone my way that you think might benefit from having someone to ask questions of.

Peace to you.

Laura

Hi Laura after a cone biopsy, I found out I had stage 1a1 cervical cancer, say had because my surgeon thinks he got it all as I had clear margins, had an MRI scan last Wednesday, so waiting for results, since having the MRI scan I've been having niggling pains almost like period/ trapped wind, I was just wondering what your MRI experience was xx

Hi everyone,

I'm new here, relieved I found this message board. I'm 33 years old and have just come back from GP where she did an internal examination, no pap or speculum or anything just her fingers, she took some blood and has referred me for a pelvic ultrasound.

Does this sound right to you or should there have been some kind of smear or something? 

I've been having irregular bleeding, quite bad pelvic pain, an achey back and I'm exhausted...feel generally quite unwell. 

I just wanted to check if it seems right what has happened this morning? 

Thank you so much and best wishes to all here, 

Nervous x 

Hello, 

I have just come across this post as I have been looking for answers. 
 

[@Bookishgirl]‍ i also have the same symptoms as you, I have been going the doctors since last August. The doctor took a bacterial swab in December and that was inconclusive. They have now referred me to a specialist but not as urgent. My last smear was 2 years ago so they won't do another until my referral to see what the specialist suggest. They did my bloods and they came back all clear. 
 

I have irregular bleeding, heavy 3 week periods, dull back ache constantly and some pelvic pain. 
 

I am so worried x 

Hi Laura, 

you're a strong lady and you should be so proud of yourself! 
 

I have not yet been diagnosed but I'm so worried I'm 25 I've had a little spotting between my last period so I went to my gp. I've never had a smear because I've just turned 25. He reffered me for a colposcopy and I'm so scared about what they might find, I'm ill from the worry I had my HPV jab when I was 13 but I'm still so scared. Any advice you can give me? 
 

Scared x

Hi Dolly,

Thank you for your kind words!  Of course I have no medical qualifications but I've read that cervical cancer normally takes some time to develop and you are very young.  My advice is, don't worry about the colposcopy, it is unpleasant but not that bad.  And, you are doing what you need to do, taking care of your health!  If it is something, you will be able to move forward and get treatment and if it isn't anything, you can be proud of yourself for facing your fears and following up. Let us know how you do!

Laura xx

Hi,

This is Angela, in my early thirties. 

Am not sure whether I can type this here. 

Since Dec, I have been having heavy periods lasting 4 - 6 weeks nonstop, only having a week or 2 gap very rarely. 

In these gaps, I get discharges like pink, red and brown. 

I am having terrible back pain and always feel tired. 

I was prescribed Nintesterone and Tranxemic Acid tablets. I couldn't take them for more than 3 days, as it gave me chest pain.

I have got a Ultrasound scan 5 week later. Just done a smear, so need to wait couple of weeks for results. 

I am in terrible pain. Did anyone feel like this?

Where can I find help soon? Am unable to do anything. 

Pls help.

Thanks in advance. 

This is what I have at the moment . I have been to my colposcopy appointment & my letter has come back with high grade dyskaryosis . 
still waiting for the results

I am experiencing tummy cramps & bloating 

I'm hoping it's due to anxiety 

Hi Tallulah

How was your outcome if ok to ask? How long did your pelvic pain last? 

I've been having bad pelvic pain since I had my smear test last Friday and it just keeps getting worse and worse :( hope whatever it was wasn't bad news for you and your ultrasound came back clear xx

Afternoon Laura, 

                          i may have to seek some advice from you regarding my wife, we are awaiting test results coming back, but shes lost 2 + 1/2 stone in weight in last 9 months and has pain during sex,back pain, hip pain and is smearing, shes been thru the menopause (lasted ages lots of night sweats etc), very worried its cervical cancer, shes 52 yo and we have a 25 yo son who is 24 hrs care and relies on his mum 24/7, so so scared

Hello,

I am sorry you and your wife are going through this right now. Let us know what you find out and we will be happy to offer any insights we can (non-medical, of course).

Laura xx

Hello,

I am sorry you and your wife are going through this right now. Let us know what you find out and we will be happy to offer any insights we can (non-medical, of course).

Laura xx

Hi just needing to vent, I had a smear test 4 weeks ago came up with HPV positive and abnormal cells I had an urgent referral for a coloscopy and had LETZ treatment. The gynaecologist said it's not cancer at the time, but as usual they do biopsy.  Just had an urgent telephone call today to go back to the gynaecologist on Thursday. I was so worried I asked if she could tell me and explain why after having Letz I thought they got it all out. She was reluctant to tell me on the phone bits it's Cancer built do not know what stage it is. She said my Cervix looked normal but the cancer cells are on the inside of the cervix. I so worried I'm seeing her on Thursday, have been booked in for scans, my mind is racing if it has spread. I have a 10 and 13 year old sons. I would just love to connect with people that have gone through this or going through this. I have so much support but not someone who has actually physically been through this xxxx. ♥️

Hi Kim,

Sorry for the delay in responding. I hope you are doing ok and have found more out about your situation. I had stage 2A cervical cancer and had chemo/radiation. What have you found out? Feel free to message me directly if you'd like or respond here. 

Laura xx

Hi Laura thankyou for responding I had my Gynaecologist appointment on Thursday she said from the biopsy it looks like stage 1b1 but I need MRI and pet scan to make sure it's nowhere else. If not it's a radical hysterectomy so scared just incase it's somewhere else every little pain I get I feel like it's all over me. I had no symptoms no bleeding, no pain whilst have intercourse or blood. The gynaecologist was shocked as she said my Cervix looked normal. It's just a really worrying time at the moment. It's very small 10mm by 6 mm xx

Hi,

I wasn't able to have a hysterectomy. I had to believe that the chemo and radiation would do it's job and kill any thing floating around. in there. Keep me posted on how your are doing and just take it one day, one appointment, one result at a time. You got this!

Laura xx

Hi Laura! 

Thank you for sharing your journey! Was hoping for a little advice. 

 I've had an urgent referral to gyno after seeing my doctor Monday (appointment for Wednesday) what should I expect from this first appointment? Is it just to talk / will they do an exam? No ones really told me much and last time I went for a coloscopy they gave details in the letter??

Bit of back ground: I'm 27, I had a smear 3 years ago which was HPV positive (high risk) and had borderline changes. I went for a coloscopy and they said all was OK and to have another smear in 3 years time (actually due now and had my letter ). I have PCOS so always had irregular smears, but since starting methotrexate (around 2.5 years ago) I didn't have any periods for a long time (probably around a year then kne period then no bleeding again) this year I've had almost constant bleeding. I'll stop for 3 - 5 days and start again, I have discharge with blood and huge clots (bigger than a 50p). following an exam with my GP Monday she said my cervix is very red and friable/ fragile. I'm not sexually active not have been for a few years so not an STD and I have regular bloods (full blood count ) which has been normal so not worried about infection. 

Guess I'm just looking for some advice on what to expect wedneaday and going forward. I'm obviously very concerned about finding out what Is wrong as I have a few High risk factors. Thank you in advance! 

Hi,

I can't be sure, but I would expect them to examine you and probably either do a colposcopy or schedule one. That seems to be the way of things with doctors, they follow a certain protocol to figure out what is going on with each patient. I think it is great that you are following up on your health and staying on top of things. That way you can address any issues and move on with your life. :) Let me know what they say at your appointment. 

Laura xx

Hi Laura, 

Sorry for the delay had a hard time getting to grips with the shambles that was my appointment. 

Dr asked me about my symptoms so I told him, he then said it was probably nothing and just my PCOS as that can cause issues. I explained that despite my PCOS for the past 17 years I've never had these issues. He examined me but the speculum was too large and therefore didn't go in all the way and then he simply stated "I'll just send you for a scan but your fine". 

It left me a bit frustrated as I feel I'm not being taken seriously, but I've managed to book a smear in for Friday so fingers crossed regarding that appointment as I've started having bleeding again only a week after It stopped  

Xx

Hi,

Hope your smear goes well. Maybe you can also get the scan and see what's what. If you get the all clear but still have symptoms that bother you, take it up with your doctor from there. 

Laura xx