Are there any survivors out there that were diagnosed with sarcomatoid renal cell carcinoma? My husband is 43 at a stage 4 grade 4, we have 3 kids that we need to prepare for what is to come. I am unable to find any recent blogs concerning this type of cancer. I have not been able to find anything positive. My husband will start treatment around Christmas and they will give him stutinib and gemzar. The trial using these drugs are not very promising but were not done on his type of cancer. There have been NO trials or studies of meds with this type of cancer because it so rare and it spreads through the blood and not lymph nodes. We have not had a pet scan done yet but CT scan showed 8 nodules in his lungs, small tumor in left kidney, large tumor in right kidney and small tumor in right renal vien. He had an open right radical nephrectomy 4 weeks ago.