Scared

My dad has recently been diagnosed with liver cancer I am scared we are not getting answers and the air for his treatment they have offered seems to be a waiting game. So sad 

  • Hi worry warrior.  My Mum has recently been diagnosed with liver cancer too. Mum's cancer was found too late for any active treatment. The advise from Mum's oncologist who we only met for the first time on Tuesday last week was to spend time with Mum and to maybe have Christmas early this year. She the discharged Mum from her care and handed her over to the cancer in the community nurses.  We haven't seen or heard from them as yet but hopefully we will this week. I have heard some really lovely things about these nurses. Stay strong my lovely, sending virtual hugs across the ether to you and your family. 

  • I am so sorry to hear of your news. My Dad has been offered TACE also been asked to take part in a clinical trial which is a drug taken alongside the TACE. My parents are unsure what to do as we don't want him taking placebo they told us that this will be the result in him dying but have given us no time scale or previous results from this procedure we just feel lost. Xx

  • Hi, I'm so sorry you've had this bomb shell dropped on you. Cancer Sucks has become my mantra these last few weeks. Sadly Mum's cancer is way to advanced for anything other than palliative care. I did research the TACE plus Serendip ( I  think I've spelt that right) tabs thinking that it might be a possibility for Mum. Whilst not an option for Mum, I would say I does look very encouraging, if your Dad has been offered a treatment that could improve the quality of his life then it's worth a try. 

  • I really hope it works but I have done lots of research and it doesn't go beyond 2 years does this mean they only do follow up for this time or is this the time I am so scared I want to know more I just don't know where to find the answers and then will I be in count down It's just so awful. Xx I am so sorry there is nothing available to your mum you see all this awful stuff in media at moment and wonder why it takes the good ones. Xx 

  • Hi ,

    please please don't be scared . It's 01.23 a.m, Mum has just woken and tucked into a bowl of jelly and ice cream with the biggest grin on her face that is an absolute joy to see. She's not in any pain, maybe a little as she calls it "loo la". The high blood calcium levels are causing some confusion but she is reasonably happy. Dad bless him thinks we are both off our trollies. Mum's time is very short , we are making the most of every minute hence tonight's mid night feast. If the TACE plus med treatment can give you extra quality time with your Dad, grab it with both hands but try to make it fun . My Dad , Mum, sister and I have spent a lot of time these last couple of weeks since we found out about Mum's cancer looking for and talking about moments of joy in our lives with each other . Yes we've had some difficult conversations about the essentials that come with the inevitable, now that's done we are concentrating on enjoying each others company as much as work etc will allow. Why is it always the good ones that are snatched away from us so cruelly I wish I could answer that for you. It's a question I've asked myself a lot recently during my moments of total emotional meltdown. Which I've had alot of but I haven't found the answer. The consultant oncologist and the Macmillan nurses are best qualified to answer you're question re treatment options and side effects. My heart breaks for you and the difficult times you are facing xxxx

    Some day a truly magical person will find a cure for this abominable desease so that our future generations don't have to go through this difficult time. Xxxx

  • What a beautiful moment with your mom. Xx I truly believe that each moment is precious and a memory  know my dad may not get to 55 is horrible my boys love him dearly left I really hope something is found quick I hold hope xx enjoy each moment with your mom and treasure sending massive hugs and your held in my thoughts xxxxxx