Anyone has experience with Gastrinoma, high level gastrin in blood Or zollinger ellison please help. my gastrin level showed over 900 first time then over 6000 second time which indecate gastrinoma tumor in pancrease or small intestin.
While waiting for others with experience of gastrinoma to come along and share their story with you, I thought I would give you a link to our information page on gastrinomas. You can find out more about it here.
We also have a team of nurses that you can call to talk to if you think that might be of help at any point. They are available Monday to Friday 9am to 5pm on 0808 800 4040 (free to call from a UK landline).
I just got diagnosed as well and am terrified. Just had to be that special. Finding support or resources has been next to impossible and disheartening.
I know the original post was a while ago but as it's so rare wanted to say hi and how are things going now with diagnosis? Seems crazy there is only this post on ZE and gastrinoma!
