Sorry to hear about your son. I was recently referred to a hematologist cause i have a high wbc and neutrophils and llymphs. I was just wondering did they tell your son anything on first visit? Thank you in advance d and sorry i cant answer your question.

We had a blood test to confim that he had Leukaemia and then two weeks after that we were told he was near haploid. Have you had some tests ?

Ive had a blood smear shows viral process but my dr said its not 100 acurate who did the blood test? A regular dr?

I have sweats, some chills at night lost of appetite at times. It seems like the symptoms come and go i had an adomen ultrasound everything came out good. But i have pain under left breast they thought my spleen was swollen but the test showed normal. The ultrasound everything was normal. I had a major change in bowels. Waiting to see gastrologist and hematologist. What symptoms your son have?

His symptoms had aome simlilarites to yours however, he is only 5 and he was diagnoed by a blood test.

Hi Tina  -  I am so sorry to hear about your little lad, it must be an awful worry for you and your family.  i can understand your concerns and just wanted to suggest that you give the nurses here on the site a call.  They are really helpful  and supportive, and I am sure will be able to answer your questions.  Their freephone number is shown at the bottom of this page and they are available Mon-Fri during office hours.  I hope you get the information you need and that your little boy continues to do well with his treatment x

Hello Tina M.

Lucie one of  the moderators asked if the nurses might be able to  comment on your post. I am very sorry to learn that your son has leukaemia.

It is difficult to say much about your son’s situation as I am not directly involved in his care. I am also unsure about the treatment he is having, because as you know he does have a very rare subtype of acute leukaemia. I would imagine that this is very isolating as getting support from others who have been through it is much more difficult.

Firstly, I do not think that you need to be overly worried about the hair growing back, as I have seen this happening on a few occasions. I am not entirely sure why this sometimes occurs. But it is probably to do with the fact that each hair follicle is independent and goes through the growth cycle at different times. Each individual hair goes through a telogen phase. This is when the hair follicle is resting. Chemotherapy is unlikely to cause any problems to a resting cell.  If the follicle ‘wakes up’ between chemotherapy cycles then I think it is quite likely that  some hair growth will be seen.

I think that you can be encouraged by the fact that your son’s blood count is good. I doubt that his medical team have just done a basic blood count where they only looked at the total number of cells. They usually do a breakdown of the different  types of white blood cells. So they are likely to notice if the chemotherapy was not working.  Do talk over your concerns with your son’s medical team, as they are best placed to answer your questions and hopefully they can reassure you.

If you think that it might be helpful you are welcome to call the nurse team here at Cancer Research UK. Our freephone number is 0808 800 4040. We are here from Monday to Friday between the hours of 9am to 5pm.

Kind regards,

Jean

Thanks Jean, that was very kind of the moderator. We have since spoken to our sons team and they have explained why this might be. I think as a parent of a young child with cancer it is often difficult not to read too much into every little change or problem. We do feel a little better but I'm guessing life will  be like this from now until we have had some time free of symtoms and treatments.

Tina

How is your son coming along. Postive thoughts your way. Have a good day.