Just diagnosed with breast cancer

Hi, I have just been diagnosed with invasive ductal cancer, I'm worried about everything, not so much the surgery but after that, what other treatment I will have, that kind of thing. When I read what others are going through I feel a bit of a fraud for feeling so emotional. I would love to hear from someone who has had similar to me

 

 

  • Hi Fabia and welcome. Being diagnosed with cancer is a real shock to anybody so of course you are worried. This is a pefectly normal reaction to such news so, no, you are certainly not being a fraud for being emotional about it, who wouldn't be? You can't help your mind going into overdrive and no doubt that's why your partner is trying to reassure you.The good thing is that it has been discovered at an early stage and can be treated. Has the surgeon given you a treatment plan yet or said what will happen next? Unfortunately there is an awful lot of waiting with this process so, if you can, try not to think too far ahead, just take things one step at a time.Easier said than done I know but you will get there. Try to distract yourself with fun stuff in the meantime and I hope you hear back from them soon. Take care  Sue x

  • Hi Sue, many thanks for your kind words. I haven't been told next steps, just that the surgery is in two weeks. 

  • Hi Fabia, I have recently been diagnosed with the same cancer but grade 3, I'm now 2weeks after surgery, lumpectomy and lymph nodes removed. On the outside I'm getting on with it but like you I'm emotional at times to, your certainly not a fraud, it's all been such a shock and happened so quick I'm going through a range of feelings. I'm due to get chemo and radiotherapy soon. You maybe need to know more information to help you process everything, next steps, your grade etc it helps put it all into perspective  but however you feel your allowed to so never feel guilty. Xx

  • Hi Bivvy, sorry to hear your news too. How did you find the surgery, were your lymph nodes ok. I don't think I have bee n told the grade yet, it maybe that I just don't remember,

  • Hiya, No the cancer is in my nodes I'm assuming all but will get results on Friday. I will find out then if they got 10% clear tissue round my tumour if not I will get another op. You may not have been told grade yet then, do you have a beast cancer nurse? Once your in hospital I'm sure one will come round and visit, they are easy to chat to, ask questions etc sometimes I feel I ask things that seem y but they never make you feel like that. You do need to no more, if they gave you a contact number you should call it or write down things you want to know for when you go into hospital as you forget so easily when on the spot. Take care and please don't feel guilty it's a huge shock. Xx

  • Hi Fabia, I was diagnosed today with stage 3 ductal cancer and felt at first relief after a weks hell following the biopsy. Your not a fraud at all, we all have to find ways to deal with this journey. Ive woken up at 4:00 in the morning feeling oh hell and hardly able to walk with shock. Been strong for my family all day saying they must be able to talk to me then realised tonight that actually I need people who are going through this. So keep talking it will help im sure. I live in Wales and have to say the care over the last week has been fantastic. Im having a breast cancer nurse coming Thursday to discuss the two operations I can have do you have this happening as well? It feels like a bit of a conveyor belt but im glad its their because for me without it the decisions would be hard. Do keep going on this forum so we can help luv Sue x

  • Offline in reply to sb

    Thanks for all your support, I took the advice and phoned the Macmillan nurse today, I am a bit clearer now. She told me they don't know the grade or stage until after the lumpectomy but she felt they had caught it quite early. I will be on a drug, the name I can't remember now and will be offered radiotherapy. I know I need to concentrate on the next step and not worry too much about the future. Best wishes to you all

  • Hi Fabian, I had lumpectomy and lymph nodes removed yesterday. I have been diagnosed with stage 1 with som DCIS but surgeon was happy with operation and still thinks there will be a clear margin. Radiotherapy then tamoxogen. Of course another 2 weeks to wait until results and they could change but my lymph system were clear so happy about that. Just so you know the surgery was fina and although today I am a bit sore and stiff I am getting on with it so don't worry about that side of things.

    my hubby is taking the same approach as yours by saying don't worry it's out now just a bit of radio to do and ots done! Not quite how I feel though! I'm still reeling with the shock that I've got cancer let alone looking forward a few months! Like others I've joined here so I can vent to people who understand how I am feeling. Together us ladies can do this no matter what xxx. 

  •  Hi scaredymummy, your post is so reassuring, thank you. Still just under two weeks to wait for mine and you have another two week wait for results. As everyone says it's all about the waiting.

    I am getting my head round it all now, at least today, tomorrow maybe different.

    Good luck with your results, keep us informed xx

  • In response to fabia 

    I was diagnosed with breast cancer in may of this year it was a total shocki was so emotional I even thought I was suicidal I guess I just wanted to run away  and absolutely the worst part was waiting and not knowing I felt like I was on a roller coaster my partner also said don't worry they will take it out he was trying to supportme.so you are definitely not a fraud  I had my lumpectomy and then had to wait a week for the results that was the worst time for me I discovered that it was in my lymph nodes four were taken and it was in 2 . I was then back on the roller coaster and was offered axillary clearance or a trial for women with early stage breast cancer and chose axillary clearance - more waiting the results showed that the op had been unnecessary as only 2 out of a total 22 were involved but for me mentally I really needed it they also discovered a " twin " cancer within the local margins - more waiting and more uncertainty but both were highly oestrogen dependent and grade 1 as a result my treatment plan was for radiotherapy and tamoxifen but then they did another test on the protein in the cell wall and that showed I was border line for chemotherapy and it was my decision I decided to have chemotherapy As it was  ," the icing on the cake " to quote my oncologist

    Anyway to cut a long story short I think you are in the worst time because you don't know what you are dealing with I couldn't sleep and just wanted to run away the things that helped me was listening to my MacMillan nurse and also I visited my local cancer centre for alternative treatment for my mental health they were fabulous  and I also tried not to listen to well wishing people who told me horror stories as every patient and every circumstance is different I  now have my treatment plan. also carry on with the fun stuff i found distraction really good - i bought a huddle and ive got realky good at suduko ! Sounds boring but it helped idecided to have chemotherapy and touch wood im coping really well I will then have radiotherapy and then tamoxifen once I got my treatment plan it got so much better I still have wobbles but on the whole I am coping  it gets better 

    Good luck