Hi Kirsty and welcome to the forum.  How very humbling to read your story and I can see why you feel your world has been turned upside down.  The McMillan service associated with your local hospital will be able to offer you a lot of support and help you with dealing with the emotions associated with the youngsters.  I am pleased your little girl will be coming home soon, it must be exciting for you all.

I cant imagine how difficult it is for you to deal with your emotions just now honey, and I can only hope that caring for your beautiful family will bring you joy and keep you strong. I hope you have a lot of friends and family who will support you.

Take each day as it comes and enjoy them and never give up hope - so many new drugs are coming on the market at the moment and I have been living with secondary disease for just over 3yrs now.

Come to the forum whenever you need and let us support you - you deserve it x

Hi Kirsty

         I just  wanted  to  say  that  my  heart  goes  out  to  you, sending  you  virtual  hugs. Xx

Hello, Kirsty, I just wanted to express my feelings for you, what a dreadful time you have had.  I really cannot imagine how you must be feeling, it must be so hard for you.  

Please do come back and talk to us and let us know how  you are.  With my very best wishes to you, Kirsty. x

So sad to hear this dear. My heart goes out to ur family.

 This is the real war on disease that the governments should fight with trillions of dollars so that it becomes curable.

With heart felt best wishes for u and ur children xxx

Hi Kirsty

My heart goes out to you, im praying and and will pray for your healing. If you want to talk, please let me know.

Marius

Hi Kirsty,

 I have a friend who had lung cancer and now has secondary spine cancer.He has been having radiotherapy for the last 3 years and has now gone back  to work.

The reason why i have asked about it is because like you i have spine cancer.

I'm 42 and 10 weeks ago i was fine,My cancer was from my kidney which was then removed..I am grade 4 which is aggressive cancer .

I am married with two beautifull children so i like you understand the shock.

Cancer is in all of us and bone cancer can be kept at bay so its not the end of the world YET.

I went through the denial like it wasn't happening then shock etc..It was like a bereavement experience with the same stages.I have a t10 and lumbar 5 in my vertebrae which are hollow and about to collapse.I am starting intense radiotherapy in a few days...Anyway enough about me i just wanted to say that if you can do clinical trials for news drugs side by side with the usual drugs then it is worth it...Also Kirsty get angry with it and fight it,keep your mind positive.

Good luck sweetheart and big hugs to your little one

Praying for you. That the lord give us all strength fighting this illiness.

Kirsty, 

i just wanted you to know I am praying for you and your family that you have the strength and tenacity to deal with this situation that is truly difficult. Our paths are never what we expect and yours certainly isn't. be brave, enjoy being a Mum and know we are all thinking and praying for you. god bless x x Mell

Hi Kirsty,

Thanks for sharing your story with us. I hope your little girl is doing well and that the rest of your family are coping OK.

Incurable is such a shocking word to hear. I hope you manage to find the strength to carry on both physically and emotionally. Too many people are probably giving you unwelcome advice at the moment so I won't add my voice to theirs. All I can offer is the hope that you find the right treatment to stabilise your condition and give you as long and quality life with your family as is possible.  
 

Good luck and please keep in touch.
Dave
x