Hello

I have just found this forum and very nervous about posting. I went for my results last Tuesday from biopsy mammogram and scan. I am now waiting for an appointment for an MRI scan. I have lobular cancer, which is not always detective through a mammogram. I thought I was wasting doctors time as I did not have a lump. Has anyone any advice of what I can expect? Thank you for reading this 

 

 

  • Hi Audrey and welcome to this friendly site. All the folk here are very caring and it is a great place to come for advice, a chat, or just to rant and rave..

    Sorry to hear you have been diagnosed with lobular cancer, no wonder you are still in shock about it, it is a lot to try and take in (I was in this same postion back in February/March so know exactly what you are going through). The MRI will give a clearer picture of the size, location and grade of the lump which will then confirm what happens next. Have they given you a suggested treatment plan yet? The usual route is surgery and then folllow up treatment after that but it all depends on your particuar case and circumstances.

    The waiting is the worst part about all this but until they have all the results and details they cannot start to sort things out for you so hang in there. Talk to friends and family and try to distract yourself in any way you can in the meantime. I am happy to chat if you have any questions or concerns and wish you all the very best. Do come back and let us know how you get on, if you would like to.  Take care Sue x

     

  • Hi Sue, thank you for your reply. I had my MRI today. I am back for the results and treatment plan on Tuesday. I do agree that the waiting is the hard bit. Your thoughts are never far away from the situation. Did you have chemotherapy?  Thanks again for taking the time to reply. Best wishes, Audrey x

  • I was diagnosed with Lobular breast cancer grade 2 2 1/2 years ago, I did not find it, this was found through a routine mammogram, when I was 57 years old.  I am now very well and carrying on with life.  Unfortunately when I was having my treatment I was not aware of this site, it is full with very caring people. 

    As sue has said it is the waiting time that is the worst, but when you begin treatment, I think most people find it easier as you are doing something to help.

    My cancer went into my lymp nodes, which meant I had to have chemo and radiotherapy. Yes, it was difficult at the time, but  now I am working full time and running around with my grandchildren.

    I can look back now and remember being very scared and frightend at the time.  

    Please keep posting on this site, as many of us on here can give you advice, and support.  I have been where you are now, and come through the other end, and if I can help other people by sharing my experiences, I will.

    Take care

    Diane xxx

  • Hi Audrey, hope thw MRI went ok? The position you lie in reminded me of the old childrens game where you put various shaped pieces into different sized holes. remember?! 

    Although both chemotherapy and radiotherapy are the standard treatments after surgery, which you have and in what order depends on the location, size, spread and grade of the lump.  None of this can be confirmed until after the operation and examination of the removed tissue. In my case, the op got both lumps and, as my lymph nodes were clear as well, I just had radiotherapy.

    It is a long old haul whichever route you take but, as Diane has said, it does become a little easier once you start having treatment and can concentrate on the next step. Patience has never been my strong point (!) and waiting is a big part of this "game" but in hindsight it all actually happened quite quickly.

    Good luck for Tuesday and I hope you can find some fun stuff to do over the weekend. Take care  Sue xx

  • Hi Audrey, just wanted to catch up and see how you are doing? Take care  Sue x