Radioactive ion injection for sentinel node removal

When I searched for radioactive ion injection in the cancer chats prior to having it done there were no results so I am writing this in case any one else does a similar search. I have invasive breast cancer grade 2 and initially had a lumpectomy done as it was thought I just had DCIS. Once the invasive cancer was discovered I had to have a Sentinel node removal (which I had on Monday) to see if it has spread. I was very very anxious about having to have the radioactive injection in my breast so for anyone else about to have it this is my experience;

the first thing to be clear about is no one can tell you what the level of discomfort/stinging is likely to be because everyone will feel it in their own unique way. The most important thing to share with you is that the whole process is incredibly short , the actual insertion of the needle and the injection of the ion itself took less than a minute- so only seconds- read that again - only seconds. It is very very quick. The needle was inserted into the edge of the aureola not actually into the nipple itself as I had thought. The nurse was wonderful and explained every step of the process. Because my nipple has lost some sensitivity post surgery I actually didn't feel anything, most people feel some stinging I was told. It really wasn't the awful experience I was anticipating. I cried with relief when it was done because I had got so hyped up about it. My nipple and breast area is tender today and I am using ouch cream (from blended therapies ) which is amazingly soothing. Hope this helps someone!

  • How are you and how was your scan? I really hope all went well last week.  Op last Wedensday was okay - longer recovery over the following days. Energy was zapped and I felt so tired.  This week much better.  Going back on the 4th September to see oncologist for treatment plan.  They originally said radio would start 4-6 weeks after op last week.  Surgeon said she was sure all of it was out now and there are four titanium markers in place for the radiotherapy.  Scar is slightly different and fluid build up is slowly dispersing which is good.  I am glad the operations are over now.  I feel positive but have moments of weakness and dread that the thought of going through operations again if it came back - I think this would be even worse than being diagnosed first time round. Do you know what I mean?  Hope you are okay though and please let me know that all is well with you.  Prayers to you and everyone on this forum.

  • Hi, welcome back! So glad to hear all went well. Really glad to hear they have got if all now. I was off work for 4 weeks after my lumpectomy and then another 4 weeks after my Sentinal node surgery so don't be too hard on yourself! I had thought I would be back to work after a week off ha ha! Seems crazy that I even thought it now? Just take it easy, do you have a partner to help out with the children? I do know what you mean about the fear of it coming back but I just try to focus on the now otherwise you can just torment yourself . Bone scan was fine nothing to worry about if a little claustrophobic for a minutes at the start! now waiting again for results and also for a gene recurrence test which takes 10-15 days to come through. We have ended up paying for this ourselves as they don't do it in my hospital trust. It will enable me to make the most informed decision about chemotherapy or not. Not that I want it of course ! Should see oncologist around the 10th to decide treatment plan. There is a 4-5 week wait here for radiotherapy if that is the route we go down. Did I tell you how helpful cold cabbage leaves were to me to ease discomfort! Take care stay positive - we are survivors! 

  • I just wrote a long reply giving a update and its just deleted!  Not my day at all.  Went back to see surgeon today - going in for another op next week - margins showing cells which too close, so need to take more out.  Told her to go mad and take out 20mm and not just 10mm.  She has to follow strict guidelines so guess not an option.  Sorry, I wrote so much and now I have to retype! Feeling a bit peed off as there know there are a few dots and the ultrasound or mammogram will not pick it up so cannot use that as a guide.  Anyway, have to be pragmatic and get on with it I guess, but having a bit of a wobble about it all.  They are hoping to get all this third time - dont want to have a fourth time so said you can take the boob off, don't want the uncertainty.  How are you doing??  I really hope all goes well with treatment plan next week.  Asked today about the Oncotype DX test - I do not qualifiy as tumour was small and not a higher grade.  Very expensive to get carried out by NHS. Something they may do in the future with cancer patients but at moment, not happening.  I am signing off now, need to go to bed.  Will let you know how Tuesday goes next week.  Body can cope with the ops, treatments etc, but the mind is not as strong - especially after today.  But I know I am fortunate and its going to be okay, but the doubt that things will not be straightforward and it will be just my luck for it to be complicated! x

  • Don't know if allowed to swear on this forum but that's what I feel like doing-a lot ! What **** news! can't believe they have to go in again **** no wonder you feel miserable don't blame you at all. It is really devastating. It is so hard to keep picking yourself up and being positive isn't it. Third time lucky! Lets hope they get all the lurking ******* cells. Was it a serious "take the boob" conversation and are they going to? I will have everything crossed for you, I so hope this is the last op. How is the after pain at present ? Keep remembering that your nodes are clear so this is all about removing the mass that is contained in the breast and it is such good news that the type of cancer is not invasive and not a higher grade. So once it is gone you will be cancer free. That is the hard bit to get your head around, my tumour was taken out on June 4th and ever since it has been more surgery and more tests so i forget that once the tumour was gone I was actually cancer free (if bone scan is clear!) I won't say stay strong, stay positive you must be sick of hearing people say that! I will say we WILL BEAT THE ***,(probably get banned from the forum for bad language now!) take care xxxx

  • Hi - yes, I feel like swearing too!!! Am okay today. Had surgery yesterday and feel much better today.  I wonder is recovery dependent on whether you have am or pm surgery?  First and Third time - pm and I felt much better day after.  Second time - am - felt rubbish for 3 days.  Or is it to do with amount of anaesthetic? Anyway, over yesterday and just a bit tired today so no problem.  I go back on 25th Sept for results.  If DCIS still there, I am requesting mastectomy - I have had enough now.  What if I go back fourth, fifth time and margins still too close and then all thats left is mastectomy.  Might as well cut my losses now and get the bloody thing off.  Maybe it's God's way of giving me the certainty that take it away and there wont be any spots left.  How can I ever be sure they got it all out if it is dotted about and not one big clump as it usually is with DCIS?  I also asked about Oncotype DX - I do not qualify - it needs to be a higher grade and bigger and very rare for hospitals to adminster this test.  She said one day they may well do but at present, no.  How are you doing with everything? When are you getting results?  Were they quite willing to give you a bone scan?  I asked how often I would be monitored. She said next June you will have mamogram and ultrasound.  But I can go to the drop in clinic anytime I would like too.  But should I ask for blood tests or further checks?  I guess I don't as it is has not gone to lymph nodes.  Surgeon also said that in Holland, they are leaving lymph nodes in and just removing the mass.  No one else in Europe will do this and she said Holland are doing lots of tests and this may happen eventually.  Hope you are feeling good.  I am really find now and if I expect bad news on 25th and margins too close, I know I have made my decision about how I move forward and I'm not interested in reconstruction - I just want them to take breast off and then I can think about it next year or maybe never! xxx

     

  • Hi, really good to hear from you so soon after the op. Glad that you are feeling better this time than last. I have everything crossed for 25th for you. I understand about needing to think about the worst case scenario I have done that all the way along as I just needed to think about what I would do in each situation. I hope this time the results are good

    Today was my results day and it is a GOOD day! My bone scan is clear and my Oncotype score is 6. Low risk is 1-18, so I only have a 5% risk of my invasive cancer moving to my brain, bones or liver in the next 10 years. Therefore chemotherapy is not recommended. I am ecstatic!  I have a prescription for Tamoxifen and have to wait for radiotherapy appointment next. I will do 3 weeks 5 days mon-fri. The test does not give guidance on the any likelihood of breast cancer returning but just not going to worry about that for now. We have a holiday to scotland booked for 20th and it has been hanging in the balance for weeks but now we know we can go! I can wait to start Tamoxifen till I get back from the holiday- I have read quite a big about side effects. Tonight I have an overwhelming sense of relief. 

  • P.s I asked for the bone scan because I was worried about a persistent pain in my shoulder that I had had for a couple of months and I think that was what swayed my surgeon into agreeing the bone scan. I did ask about blood tests to monitor me moving on but my surgeon didn't seem to think they would offer helpful info. I think the Oncotest will become more widely available with time, some counties are paying for it now. My surgeon said I could be referred to another trust to see if they would pay for it but it could have been anywhere and I wanted to continue my treatment in my own home county. The test has a set of criteria for eligibility I just happened to tick them all node clear, invasive cancer, stage 2 ER positive HER2 negative. I think the decision about leaving the nodes in or not depends on where you are. They originally thought my lump was just DCIS and that was why they left nodes-that's what they do here. They only operated and took the nodes when it turned out I had some invasive cancer as well .  Need to sleep now exhausted , take care be kind to yourself x

  • This is the best news - I am truly delighted for you getting the positive results.  You must have felt weak with relief when they told you.  Thank God the bone scan was clear.  When will you start Radiotherapy?  Do you start taking the Tamoxifin at the same time or does that come afterwards.  I haven't read much about side-effects but I can imagine there is but hopefully your body adapts.  My friend who has had breast cancer three times over the past 20 years and is still going strong in her 60's, said she actually felt better taking the Tamoxifin and felt as though she had more energy and was stronger for it.  I am hoping that I feel like that too!!  I will keep you posted re 25th.  Am hoping margins are clear now and have just been reading other posts with similar situation.  It is a big step to have a mastectomy but do you keep going with re-incision just in case they clear it all.  I felt I had made my mind up that I would go for a mastectomy, but now I think I have recovered quite quickly this week after Tuesday and if they feel the appearance will be okay, if margins not clear, maybe give it one more go.  I don't know - feeling unsure about it all.  I am small on top so doubtful that anyone would ever know I had only one boob.  Will have to keep researching.  Take care and so glad all is well with you. Please stay in touch.xxx

     

  • Hi , just a quick hello to say good luck with your results on 25th. Off to Scotland on 20th so look forward to hearing your news on my return. Have a date for my first radiotherapy appointment on 29th September to have all treatment outlined. Will also start Tamoxifen on that day . Already having some hot flushes so bit worried that they will get worse, have read they can do! Oh happy day!   Have everything crossed for you x

  • Hi Bernienb- anyone out there.???? Worrying about you and the outcome of the 25th. Update me if you are able  to. Had my tattoos today for radiotherapy including a very annoying little one in the middle of my cleavage that looks like a blackhead! Felt really wierd having 2 big burly guys manhandling me (albeit gently !) up to this point have only been seen by women. Need to start my Tamoxifen today but feeling really reluctant to do so, I am worrying about side effects.  I really hope that you are ok, remember we are survivors!