Feel like going around in circles working out best treatment. I have an adenocarcinoma which is between pancreas and small bowell. Biopsy has confused oncologist as it says cells could be from pancreas or small bowel or confusingly large bowel. It hasn't spread so could be a mistake in there as large bowel is no where near where biopsy was taken from. Therefore she agreed with us that we need a second opinion and as those who looked at biospy another call. We were asking about radiotherapy with chemo but she said that if we had radiotherapy then surgery would be out of the question. At the moment it is inoperable because it is wrapped around nerves and blood vessels. In lots of pain and should be getting a patch next week - any ideas on best ones would be good. She mentioned capecitabine what is this like? . The confusion for it taking so long to diagose is that I had an ulcer that perforated from taking anti imflamotry drugs. Not sure if connected or not. Would love to hear from anyone who is having as much trouble getting a diagnosis. Any ideas of where to get second opinions from as well and how long they take.
