Mum has been diagnosed with stomach cancer

Hi there.

My mum has been diagnosed with 'gasto intestinal' cancer. They only told us yesterday after waiting two weeks for biopsy results. She is still on an assessment ward awaiting a bed on oncology ward. I asked what stage the cancer was at but the doctors on the assessment ward seemed to be a bit clueless. I really need to know what she is dealing with. Can anybody who has been in similar situation tell me at what point we will find out about staging and prognosis. She has a pet scan on tuesday.

Can I just say thanks to davek and Kat32x0 who replied to my desperate post on the pre diagnosis forum. They helped me through a really horrible time when awaiting my mum'sresults.Hope they read this and know they made a difference. 

  • Hi Joey, I know exactly what your dealing with, my dad was diagnosed with stomach cancer last week. We also waited two weeks for the biopsy results. My dad had his pet scan yesterday and that's when they can tell what stage its at, but we have to wait again for the results to come back next Friday when they'll give us a prognosis. It's the waiting that's the worst. I've been told that even if my dad can have the operation it might take weeks before it happens. It's took 4 month for my dads diagnosis and he's really ill, can't eat and in pain all the time. You said your mums already in hospital? My dad hasn't been asked or given the chance... Hmm.

    Because my dads had these symptoms for 4 month, lost 4 stone and not eating in expecting the worst. Today has been awful, I've come to realise that I'm going to lose my dad to this disease sooner or later and it breaks my heart. It's awful seeing him in pain and my heart goes out to anyone in this situation.

    If you ever need to talk I'm here, Sarah xx . 

  • Hi Sarah.

    Thank you for replying to my post. So sorry to hear you are going through the same thing. Mum turned up at A & E about 4 weeks ago because her pain was that bad. She waited 7 hours for a bed. They didn't seem to know what was wrong with her, only that she had blood clots on the lungs. I don't reckon they will keep her in hospital now they know what is wrong. After the Pet Scan she will probably be discharged.  So sorry your Dad is suffering so much. Yes, its heartbreaking.

     Like your Dad, Mum has not eaten (been on a drip all the time) and she vomits every day even though she has nothing to bring up but bile.She said she has no feeling s of hunger, she feels full all the time.  Please let me know the results of your Dad's Pet scan when you get them. Like you Sarah, I am dreading what the next few weeks will bring. I just hope they can both be operated on. If its at a later stage, then I don't know what the treatment will be.

    Please keep in touch. Jo xx

     

      

  • Thanks for replying, yes keep me updated with your mam too. Seeing my dad like this is the worst thing I've ever had to deal with (and I imagine it's the same with your mam too) we really do just have to hope they do have a chance of an operation. Friday's going to be the worst day of my life, I already feel nervous about it. Please let me know when the results will come back for your mam. My dad has stopped eating altogether and just drinks milk, he's very reluctant to be fed through a tube and it's so worrying! Everyday is a struggle but somehow we have to get through it. I'll be wishing the best for your mam and your family, Sarah xx

  •  

    Hi Sarah-Well today has been the worst day of my life. They are not doing a Pet scan now as they have all the info from a CT scan she had yesterday. The cancer is at Stage 4 and has spread to her bowel, liver and lungs. The bowel is pushing on to  her liver so the liver function has not been working properly. The consultant said they can't do any Chemotherapy until her liver function improves. Even with the Chemo, they said she only has months. I feel like my world has collapsed around me. I am praying your Dad has better prognosis. Love to you and your family, and thanks for listening to me. Jo xx

  • Jo,

    I'm so sorry to hear that the results from your Mum's CT scan were grim. I do hope that her liver function can be improved and chemo commenced, if that's the care pathway she chooses to take. 

    Thinking of you and your family.
    Dave x

  • Thank you Dave for your support. I too am hoping her liver function improves. Its all we have now. However, as you point out, it is her choice and she may choose not to have chemo. Thanks again for your kind words. Jo x

  • I originally went to my GP with stomach pains, night sweats etc 5 years ago and all my symptoms were fobbed off as psychosomatic despite no tests or even a cursory examination. Eventually I was admitted as an emergency through A and E after vomiting a large amount of blood.I had been unable to eat or even keep down water for months and the pain was unbelievable. When I rang the GP for pain relief I was told to take 2 paracetamol! I lost 4 stone in weight and could barely walk. In hospital they did many tests where they discovered stage 4 lymphoma. I have just had cycle 4 of chemotherapy yesterday. If offered this treatment please take it. I was so ill on admission I had to stay in hospital for cycles 1 and 2. The staff and doctors have been wonderful and the chemotherapy has radically reduced the amount of pain which is fantastic.My stomach no longer feels full of hard lumps and I can feel myself that the area feels totally different. I saw my consultant yesterday and he was pleased with my progress. I will have another scan soon to verify progress.

  • Hi ejay, I hope my Mum will take Chemotherapy if it is offered to her.The consultant seemed doubtful that he will be able to sort out the narrowing which is affecting her liver function. Is your chemo curing your condition or just keeping it at bay for a while ? Sorry for the ignorance but I am not familiar with Lymphoma so not sure what the prognosis would be. The consultant said with Chemo Mum may have a few months. Jo x 

  • So sorry to hear about your mam. Like Dave has already said I hope her liver function gets better so that at th I very least she has an option. Thinking of you and your family at this difficult time :( I'm so nervous about tomorrow but I will let you know as soon as I can, Sarah xx 

  • Thank you Sarah. I hope she has some options too.  I will be thinking of you tomorrow. I am praying you don't hear the same news that I heard this week. Whatever happens, you are not alone. Everybody on this forum understands. Take care and thanks for your kind words. Jo x