I have been reading these threads for a while. A little reluctant to join in as my symptoms are very much itchingness and small white patches that appper. I was diagnosed in 2014 with CTCL and as it stands i have been ok. 

I just wanted to reply to thread above. I have had an ongoing cough for a number of years. It comes and goes. The GP's do not why,  so they have given me inhalers that last for just a week, which seems for a bit. I do not why this has started or even if it is related to CTCL. However with cornoavirus i am now even more confused by the situation.

I'm pretty sure that my cough is connected to the mycosis fungoides a pretty big coincidence otherwise as it came at exactly the same time as the cancer jumped to stage 2b tumour forming.although I'm, obviously, worried about the covid-19 I consider that the mycosis fungoides is a greater threat to my life as now it is, thanks to covid-19, untreated and unsupervised apart from steroid and emolient creams.although obviously I'm not alone.the advice is to anyone with leukemia or lymphoma not to venture out it doesn't say that someone who has stage 1a mycosis fungoides can and someone with 3a can't anyone with lymphoma but obviously it may be difficult for folks who live alone plus there's the psychological aspect of being indoors for weeks on end.i have used common sense go for a walk and avoid other people and don't go into shops if you can find one open!also spray door knobs,etc,with antivirus spray.

Hi there I hope you don't mind me messaging on here, I'm just a little worried out of no where I have 3 patches of darker skin on the back of my hands. They don't itch or burn but they have apoeared out of nowhere. 
 

I did make the mistake of googling and it came up with skin lymphoma. They were reddish but are now more brownish. They are on the skin between the knuckles.

plese can someone offer me some advice. I do have health anxiety so not even sure if I'm thinking straight. 
 

any words of wisdom would be massively appreciated 

Firstly do you have a history of ezecma or psoriasis as they are much more common than mycosis fungoides and therefore more likely to be one of them?for the record mycosis fungoides patches generally are made up of tiny bubbles and stain the skin red a bit like the birth mark on Mikhail Gorbechev's head!my understanding is that they are caused by lymphoma cells rising to the surface and are a combination of them and the body fighting them and unlike a melenoma the skin is not itself cancerous although mycosis fungoides is misreported as a skin cancer like with the death of a singing religious minister in Johannesburg late last year from it.have a hospital take a biopsy and hopefully it won't be mycosis fungoides but something less serious.

Hi Andy, Mori and all the MF family 
 

Just a message to see how everyone is coping in this unprecedented times. Hope everyone is well and keeping safe!!

Jay

Hi Jay,

Thanks for the message. Staying safe here. In northern Germany we have had fewer cases than in southern states like Bavaria. Everyone I know of is healthy and being in isolation for just over 7 weeks now has been tough. More so on the kids than adults, but luckily, my son heads back to school today!

The MF treatment continued sporadically throughout the lockdown, with nurses in the hospital I go to shifted around to where they were needed. I started UVB treatment in Jan and while it’s still ongoing, I feel that the patches have become more significant than before. They still itch but I am hopeful it will ease soon.

I hope too that you are keeping well and are not too adversely affected by Covid-19.

Stay healthy.

George
 

Hi George

Its good to know you and your family are safe and well.

Germany has tackled this virus very well! Here in the UK not looking good unfortunately. Many have died from this devastating virus but good news is that the rate of infection is slowing down.

Good that your UVB treatment has been on going, mine on the other had to be stopped cause of the pandemic. Hopefully when this sad times comes to an end I can restart my UVB treatment.

Keep well and Safe George!!

Jay

Hello All

We've been very lucky in Western Australia, only 551 cases and 9 deaths, most of which were travellers on cruise ships.

Nationally, almost 7,000 people have been infected, and almost 100 have died. 

I shudder when I see the UK and US figures.

Winter begins in June, and I suspect I'm going to need UVB maintenance.

Regards - Mori 

Hi Mori,

I have been keeping a close eye on the Aussie stats. It was a great response indeed. It seems though that the borders may be closed to international arrivals for a while yet.

Hoping all returns back to normal by next year (planned visit). :happy:

Take care,

George