I'd show a doctor these cysts or tumours urgently and get a referral to a dermatology hospital.theyre terrible things if it's mycosis fungoidis generating them although one I had went by itself the other 3 didn't.the worst one was on my middle finger and had penetrated the bone and the finger had to be amputated as it was working it's way to the hand.i knew it was very unusual as at one point I was in such pain I went to a minor injuries hospital in my home town in North East England when visiting my mother and they where shocked by it and said that they'd never seen anything like it before.make no mistake these things are life threatening.

I'm definitely going to mention these on tuesday, and also ask them whether they suspect MF, being 19 years old, losing my hair is so disappointing and it's such a struggle trying to cover the bald patches in the morning :(

Good luck with it! another option for the lumps is athritic psoriasis obviously you'd have to assume that your ezecma was misdiagnosed psoriasis not good but a less worse option than mycosis fungoidis.athritic psoriasis produces lumps and I knew someone who had it.

When I try to like squeeze the cysts, these hard little things come out, they look like a rice grain but smaller with a black tip, it sounds gross :(

Best show a doctor and don't squeeze them they'll get infected.put antiseptic cream on them if they are ruptured.

Hello Paddington

i hope your medical meetings are helpful.

Unfortunately its often difficult to diagnose Cutaneous T-Cell Lymphoma.  This is because it's not a mutation of a single gene.  Many genes are mutated, and everyone's basket of mutations is different.

My case is mild, and only requires UVB light treatment.

Canopus has a more severe form.  That frightens me.  Canopus has been through hell.  But that's the nature of this rare skin lymphoma.

Cheers - Mori

I really appreciate everyones help on here, it's nervewracking hearing all the stories, I hope you all get a lot better.. I can't imagine what you've all been through :(

I'll try that, I hope the doctors can figure it out soon!

Hi there mori ,my husband has cutaneous t-cell lymphoma Mf,diagnosed in 2015 ,was being treated for 5 years for psoriasis, by the time he was diagnosed he was stage 4b after a lot of treatment ,radiotherapy, full body radiotherapy, dhap chemo ,finally decided on stem cell transplant ,week or so before transplant scans revealed the lymphoma hadvspead to his ,lungs ,bowel ,Basel cavity and up to his brain, thank god it was decided to give more dhap chemo and still go ahead with transplant ,January 24 2016 ,all has been good until about 18months ago when he relapsed in his skin ,so now they have him on bexarotine ,transplant is still at 99% he's been on that since June last year so far it's been a case of getting his thyroid under control and his cholesterol drs are pleased with how it's going at the moment ,considering all the harsh treatment he's had he's doing well ,so all you people hang in there x