Neuro-endocrine cancer

I had a bowel resection last year and, totally by chance, they found a neuro-endocrine tumour on my appendix. My appendix was removed during the resection operation, which is a relief. I had an octreatide (hope that's the right spelling) scan and they found no traces of cancer. My oncologist is very up-beat about it and says the odds are very much in my favour. But he is dealing with very sick people and dying people every day, and I am concerned that he is up-beat because I'm the least of his worries. I've scoured the Internet for information about this kind of cancer, but I have found very little information. Does anyone out there have any experience of this type of cancer?

 

 

  • Hi FionaMc,

    sorry i havent got experience with what youve got but all the people that work in the oncology have to tel you the truth! no miss leading 100% truth good or bad..! and im sure they treat and think of all there patients the same as they have chosen to do whay they do because they want to help and cure people of cancer as thats there goal, The more they cure the better name they get and become well known for how good they  are in this field so i wouldnt feel like your not as inportant as some! he may be upbeat because he knows/thinks you are an easy fix n nothing to worry about, Stay possitive n good luck  Andy.

  • Thank you for your kind and supportive reply, Andy. It really has made me feel better. My very best wishes to you. Fiona x

     

     

     

  • Hi Fiona, 

    I was diagnosed with lung carcinoids nearly ten years ago now,. I had major chest surgery, which has cured me, but left me in a lot of bone pain due to the damage to my ribs etc.etc. I was under the oncologist for 9 years having regular scans as they were not sure whether the 'bone hot spots' were malignant or not, but now they have decided that ithey are just a result of 'wear & tear.' ( I  had orthopeadic problems as a chld & some fractures) & now osteo arthriitis .

    What  I now realise & as they told me at the time, surgery is the best treatment for neuroendocrine tumours & is very  effective, but  there might be side effects of the surgery. With the help of a pain regime, I have to learned to LIVE with them & I try to forget the Cancer 'bogey man'. We are lucky to have had such an indolent cancer, as my oncologist called it. I can reassure you they do now what they are doing, I was a Nursing Sister myself so very sceptical also, but with modern scans the diagnosis is fool proof.!

    With my best wishes  for your speedy recovery,

    Abi.

     

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  • Hi Abi

    Thank you very much for your kind and  reassuring message. 

    I will never again be annoyed by anything indolent!

    Best wishes

    Fiona x