Hi jenny .... I just wanted to welcome you to the site, I remember how difficult it was to write that first post! I am sorry to hear of your diagnosis but also happy to see that you are coping well with the chemotherapy and have such a positive prognosis. I know very little about leukaemia but I hope the moderators will post you some links to other postees who you can share your experiences with. You are doing really well returning to work - I have an injection after each chemo cycle which protects and boosts my white blood cells. It is called Nuelasta, so it may be worth asking about at your next oncologist appointment. Take good care and please keep in touch whenever you need. I hope others will be along soon to share their stories with you x

I know a lot of people feel that way.  I often sit in a busy place and feel very alone seeing everyone buzzing around and having fun. I feel like standing up and shouting it out but obviously never would haha! Probably be carted away in a straight jacket.  It's difficult cos friends say well meaning thing's but actually don't have a clue about what's going on for you in every aspect of life - financially, relationship, getting to appointments, chemo side effects, can't plan anything cos of treatments/feeling unwell. Be lovely for someone to just turn up with a meal and say "you must feel like ***" and I'm here for you,  instead of you know where I am or stay positive.   Grrrrrrrrrr!      Keep in touch - you know where I am haha!  X

your spot on Max!, yes, people do mean well i know, but  when your going to hell and back nothing makes sense any more, i am very lucky to have so many good friends and family who are supporting me all the way, but still at times feel totally alone, im sure many feel like this, but we have to keep on fighting, its the only way i think. take care my friend x

Hello jennymac,

I noticed you have already received a very warm welcome from Max. I thought I would say hello (I'm one of the Cancer Chat mods) and mention our information page on Chronic Myeloid Leukaemia. But you sound pretty well informed and what you are looking for above all is to talk to others suffering with CML. Well, only yesterday someone posted who seems to be in a very similar situation to yourself asking exactly the same question as you, how people cope with CML. You can read marcon's message 'CML Sufferer' here and perhaps you can support each other so feel free to respond to that thread.

Another thing I can suggest to you is perhaps to change your title so that it includes the word CML or Chronic Myeloid Leukaemia. This will make it easier for others who have CML to spot your thread immediately and post straight on it. You can read some tips on how to make sure your post is read on the forum here.

I hope this helps and I will now let others do all the talking :) !

Best wishes,

Lucie, Cancer Chat Moderator

Hi Jenny,

A quick welcome from me to you and all the other newbies.

I'm pretty sure everyone has their "why the **** me?" moments and we've all had our share of well meant but stupid comments - "have you tried green tea?", "but you look so well", "but you've never smoked", are some of my favourites. 

As I said to someone else a few moments ago - this is a good place for a rant at the stupidity and unfairness of it all - as well as somewhere to get some practical advice from the nurses and from people who have been through something similar.

All the best
Dave