Wife just diagnosed with breast cancer feeling lost...

Hi there,

I have never posted anything on a forum before, apart from the odd comment about football. But feel I need some support, advice, humor and guidance now. My wife is 41 and discovered a small lump in her right breast about three weeks before Xmas. She was referred by her GP to the local breast cancer clinic, and we were convinced that it was just a cyst nothing more, a consultant initially considered the same on first examination. She had a mammogram and subsequent ultrasound and biopsys where the mood rapidly became more serious. We were asked to go into a small room ( never a good sign in a hospital in my experience) where the consultant reappeared with a breast cancer nurse, he said that certainly something was serious and sinister in the ultrasound but without further results couldn't really tell us more. As it was over the festive period with four consultants on hold we had to wait three weeks for a follow up appointment. We actually knew what was coming, but a surgical consultant saw us last week to confirm that indeed it was malignant cancer. There were five different areas of concern in a nine centimetre area in the breast. The treatment plan is chemotherapy, mastectomy followed with radiography. Throwing everything at it. We are still in shock. My wife is the main worker as we swopped roles, we have two children 5 and 3. Our world has literally gone on its head and there is so much to take in at the moment. Friends and family have been great. But its still huge!!

Sorry if its a long post. 

But just getting this out there.

 

  • Hi Steve

    yea = I went into total shock and a mini funny turn when my wife was found to have cancer. I think people do go through a real shock when Mr. C. decides to enter their lives. I know the treaments are good if not long winded = you will know the cancer centre well by time yr wife has finished treatment. You have to be strong for your wife and family - and thats the hard part. The children will want to know whats going on and there will be many times yr wife will really need you. There are plenty of people here who are in the same boat = we can all help and support. 

    all the best - let us know what happens and never be concerned to write here = then we can help

    steven

    All 

  • Thanks very much am sure will get to know everyone at the centre!!

     

  • Cheers

    the whole experience made us even closer 

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    Hi Steven and welcome to the forum, although I am so sorry to hear what has brought you here. A cancer diagnosis certainly does turn your world upside down - I still find it hard that in a matter of minutes when the doctors tell you 'you have cancer', your comfortable world changes in a flash.  Many of us here understand that feeling and the turmoil that it causes to the whole family and friends.

    I have breast cancer and am one of the very small minority who has spread of the disease a few years down the line - so please dont take me as an example lol!  Seriously, the treatment for BC is exeptionally good and survival rates are very very high - so although there is a tough journey ahead for several months, your wife has a very very high chance of having no further problems and living to a ripe old age.  It is scary I know, particularly with a young family, but please remember that and stay positive and take one day at a time.

    Dealing with more practical issues while going through treatment - I will just give you a couple of tips I have learned along the way.   The McMillan service are brilliant for financial/benefit advice and are normally contactable via your local hospital.  They will also help you with how to explain things to your children if needed and be there for both you and your wife too.  You can also ring the nurses here on the forum Mon-Fri (freephone) who are a wealth of information and support.

    Several of us here have been through treatment for BC so please post any concerns re surgery, chemo, RT and I am sure everyone will send you their tips and support.

    I dont underestimate how awful this is for you too Steve - my husband has been my rock but I know it takes its toll in all areas of his life and he feels so helpless at times.  Just remember that you can always post - on good days and bad - to get things off your chest - some times it just helps to put things in perspective by writing them down. 

    Please keep in touch and let us know how you are both getting on. x

  • Thank you so much for your reply it means alot. The kids are a good distraction but am concerned about them being little germ factories during my wife's treatment. Any practical tips on that would be gratefully received...

  • Hi Steve and welcome to the forum. Sorry to read about your wife's diagnosis. I see Steven and Max have already welcomed you here and given you lots of useful advice. One thing I would possibly add with regards to the children - it may be worth letting your eldest child's school know about your current situation. I work in a school and if staff are made aware of a change in a pupil's family circumstances, we are better able to support the child if they have 'wobbly' days. Your youngest may be in nursery, so the same may apply there too? Obviously, it's a decision you and your wife have to make though. Do post as often as you need to and let us know how you're all doing. Take care, Jo x
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    Steve - thats a good point regarding your little 'germ' monsters!  I would definitely note your concern with the oncologist because if your wife is on chemotherapy this could make her more susceptible to infection.  Hopefully he can then arrange for her to have more frequent bloodtests to check for Neutropenia.  I actually self-inject (Neulasta) 24hrs after my chemotherapy infusion and this increases my white blood cells to help defend against catching infections - but due to costs I know that not all NHS areas will supply this.

    Maybe sensible measures all round generally will help too - everyone taking a daily Vit C tablet, healthy eating, fresh air and washing of hands lots, using a bacterial spray for cleaning etc.  Sadly, however good we try to be you can guarantee we will always be the one standing next to a 'sneezer; in the supermarket queue!  Any sign of  your wife having an infection and just ensure that you ring her oncology team straight away - but I am sure you will be told all this when treatment starts.  Good idea from Jo re schools too! x

  • Hi Steve Welcome to the club no one wants to join! My husband was fantastic throughout my cancer treatment - very positive and great practically. I did worry how he was coping emotionally because I knew he didn't want to worry me. So make sure you offload your worries here if necessary. It's a bit of a rollercoaster! Also, make sure you accept all offers of help re the kids etc as people really want to help. Debbie
  • Hi Steve

    I really feel for you I know how shocking it can be to be given this kind of news. 5 years ago both my husband and I were told we had cancer within 2 weeks of each other - him with rectal cancer and me with breast cancer. You will cope with everything together - not easy but definately doable. I found the people on this site gave me so much support at that time. We are much older than you and your wife and you having 2 little ones is extra pressure but also extra incentive if that makes sense. Cancer treatments today are so much improved. Chemo is the hardest but sooo effective. You will need support during this time and this site includes so many who have been in the place you are now and believe me they will give you all the support they can  Best wishes to you and your family

    Jan xxx