Ileostomy reversal after rectal cancer op

Hi I wondered if anyone can give my husband some advice. Since his reversal in November my husband has been having qute a few problems. Just after the op he was in terrible pain but that appears to have got much better. His biggest problem is having to go to the loo at least 6-7 times straight after eating anything. We have tried leaving out or adding various food but nothin seems to work. The doctor precribed loperamide but he is now taking maximum dose and still nothing changes. Does anyone know of a different drug. The doctor suggested adding codeine but we have been advised by nurses that this could cause more problems. My husband is now virtually housebound unless he starves himself and has nothing to eat or even drink much after getting up until he gets back to the house. We would be grateful for any suggestions.

Parents
  • Hi, I have had the reversal, last July, been a challenge to say the least, 

    am now using an iry irrigation system, it’s changed my life, use in the morning and have no thoughts of the bathroom all day and night, it’s made by Braun, none invasive, I feel like my old self before all this cancer started 18 months ago, .

  • Hi Tumer 

    Hope you are well  . 18 months ago  I was diagnosed it's been so tough . I had chemotherapy and radiotherapy  and then the  stoma bag  and  on 29th of  November 2018 my stoma bag  had been reversed. With little information  to me only  it's likes being in the  middle  of  sea  swimming  back against the tide.  Since reversal  I am going through hell I can't put on weight and one minute diarrhoea the  next  constipation.  How is your  irrigation  system working and how long after reversal can one use this system any advice I would be  very grateful.  Regards Cormac 

  • Hi,  you can use irrigion once your surgeon has checked you are healed, 

    the iry system is quick and simple good to use, if you look on the internet it will show you photos,  

    it is run on battery so no pumping by hand,  only inside bu about 3/4 of an inch if that, just a little ky jelly on the cone and I find a tiny bit on the anus, it slips in easily, support it by hand turn on pump the dial gives 1 to 6 I prefer about 4, use as much water as comfy to you, I use just under a litre, sit on loo about 10 mins to allow evacuation,  and you are good to go for 24 hours!  

    I sympathise with you totally,, my reversal was last July, the results were so much worse than the stoma,

    hours of misery in and out of the loo, scared to leave the house,  all dignity and pride out of the window! 

    Of course better than dying of cancer! Try the iry when you can,it’s changed my life, I have it back! Good luck Xx

  • Hi Turner,

     

    Can I please check were you able to purchase the Iry system by Braun and if yes from which outlet have read the reviews and the official video's on the web but unable to locate any retail outlets selling the product.

     

    Many thanks in adfvance.

     

    Kind Regards

     

    Dave

Reply
  • Hi Turner,

     

    Can I please check were you able to purchase the Iry system by Braun and if yes from which outlet have read the reviews and the official video's on the web but unable to locate any retail outlets selling the product.

     

    Many thanks in adfvance.

     

    Kind Regards

     

    Dave

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