Ileostomy reversal after rectal cancer op

Hi I wondered if anyone can give my husband some advice. Since his reversal in November my husband has been having qute a few problems. Just after the op he was in terrible pain but that appears to have got much better. His biggest problem is having to go to the loo at least 6-7 times straight after eating anything. We have tried leaving out or adding various food but nothin seems to work. The doctor precribed loperamide but he is now taking maximum dose and still nothing changes. Does anyone know of a different drug. The doctor suggested adding codeine but we have been advised by nurses that this could cause more problems. My husband is now virtually housebound unless he starves himself and has nothing to eat or even drink much after getting up until he gets back to the house. We would be grateful for any suggestions.

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  • Hi Sitesi. So sorry reading this and now gives me even more concern than I had prior to my reversal operation, which was only a week ago and discharged yesterday. I was informed before the day after the revrseal procedure that I would be seen by a dietician, given a booklet on diet and varios medication that would help on my return home. Since my operation and return home I have been loo countless times each day (25-30times)and had at least 12 or 15 accidents, everyday.  I was discharged with no diet information, medication or discharge note! The only information I was given was, if my diarrhoea continued was, an anti-diarrhoeal medication imoduim,fybogel or loperamide. Apparently will help to thicken the motion, making the stool more bulky particularly fybogel. Did you manage finding anything that helped cure or improve the problem. We are all booked as a family for a big celebration flying on holiday in 8 weeks and now thinking of dropping out which will be devistating as well as day too day living dealing with the severe problem.

  • Hi. I had my reversal 10 weeks ago and was lucky having quite a lot of support prior to and now following the reversal, although I do have days when I need to go to the loo around a dozen times a day. I was told that I needed to do pelvic floor exercises following my operation for rectal cancer last August. It takes around 3 months for the muscles to be effective and it’s something I need to do a few times every day for the rest of my life. I have found that it does help in preventing accidents most of the time. I have been lucky that I don’t use loperamide too much and am still experimenting with that and Fybogel.

  • Don't worry, it certainly does get better over time.

    But it does take time.

  • I guess I'm impatient sometimes, particularly with not being able to eat the food I love . The irony is that I used to have a lot of fibre in my diet and love beans, pulses and salads. Maybe one day! 

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