Ileostomy reversal after rectal cancer op

Hi I wondered if anyone can give my husband some advice. Since his reversal in November my husband has been having qute a few problems. Just after the op he was in terrible pain but that appears to have got much better. His biggest problem is having to go to the loo at least 6-7 times straight after eating anything. We have tried leaving out or adding various food but nothin seems to work. The doctor precribed loperamide but he is now taking maximum dose and still nothing changes. Does anyone know of a different drug. The doctor suggested adding codeine but we have been advised by nurses that this could cause more problems. My husband is now virtually housebound unless he starves himself and has nothing to eat or even drink much after getting up until he gets back to the house. We would be grateful for any suggestions.

Parents
  • Hi

    I had my stoma reversal in July 2015. All the same problems.

    I had cancer of the bowel, any closer to the annul opening and I wouldn't have been able to have the reversal.

    These are a few things that have helped me.

    I read an article on bile, I was suffering a lot of the same symptoms, severe burning when I went. So bad I would come out in a cold sweat thinking about going to the toilet.

    The article was informative, bile is produced to handle fat in the diet, it is to a large extent re absorbed by the large intestine. I was short of large intestine so not all the bile was being re absorbed. Bile is very aggressive and disolves tissue. I cut down on the amount of fat I ate, particulalry cheese and chocolate.

    It took a couple of weeks but the burning did reduce, it didn't go away, but was liveable with.

    By chance I identified I was having a reaction when eating an orange, within 20 minutes of eating an orange I was on the pan, big time. The strange thing is I can eat tinned manderines without a problem.

    Then I watched one of those where does your food come from programs, orange squash is made with whole oranges, ervery last bit. I was drinking orange squash every other day. I cut it out, another noticable improvement.

    A point worth noting, when you had the bag nothing went into the bowel. The bowel is not just a storage area, it absorbs water back into the body as well as bile. It is also one of the least understood organs in the body, it is only in the last 18 months that the stomach has been recognised as an organ in it's own right.

    The bowel uses living organisms to help it process the waste produced by your body, while you had the bag they starved to death. It is probably why you are told it takes two years to get back to any sort of normal, those bacteria need to be reintroduced into the gut. No idea how that happens. Babies probably get the bacteria from their mothers milk.

    In the last 4 months things have improved for me. 

    hope this is helful

Reply
  • Hi

    I had my stoma reversal in July 2015. All the same problems.

    I had cancer of the bowel, any closer to the annul opening and I wouldn't have been able to have the reversal.

    These are a few things that have helped me.

    I read an article on bile, I was suffering a lot of the same symptoms, severe burning when I went. So bad I would come out in a cold sweat thinking about going to the toilet.

    The article was informative, bile is produced to handle fat in the diet, it is to a large extent re absorbed by the large intestine. I was short of large intestine so not all the bile was being re absorbed. Bile is very aggressive and disolves tissue. I cut down on the amount of fat I ate, particulalry cheese and chocolate.

    It took a couple of weeks but the burning did reduce, it didn't go away, but was liveable with.

    By chance I identified I was having a reaction when eating an orange, within 20 minutes of eating an orange I was on the pan, big time. The strange thing is I can eat tinned manderines without a problem.

    Then I watched one of those where does your food come from programs, orange squash is made with whole oranges, ervery last bit. I was drinking orange squash every other day. I cut it out, another noticable improvement.

    A point worth noting, when you had the bag nothing went into the bowel. The bowel is not just a storage area, it absorbs water back into the body as well as bile. It is also one of the least understood organs in the body, it is only in the last 18 months that the stomach has been recognised as an organ in it's own right.

    The bowel uses living organisms to help it process the waste produced by your body, while you had the bag they starved to death. It is probably why you are told it takes two years to get back to any sort of normal, those bacteria need to be reintroduced into the gut. No idea how that happens. Babies probably get the bacteria from their mothers milk.

    In the last 4 months things have improved for me. 

    hope this is helful

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