Hey Ladies just had my post OP follow up and it appears that they didn't get all of the little sucker. The margins weren't clear in fact every bit of what they took out was AA. In other words there is more left.I will have a scan in a few months to see whats left of it.
No plan at the moment, just focusing on recovery. I have to wait a few months to get a scan and then they will take it from there. You be strong too, looks like we will be dealing with this AA for a long time so we must keep fighting.
Sorry it's Zoladex and Letrozole I'm on. I am having hot flashes for sure but it isn't as bad as I expected. I have had a few that I found I got sweaty and that made me have to stop what I was doing, but not too many. I feel warm a lot which is not like me, I'm normally cold most of the time. This is my first month without a period (yay!) after having 2 injections and less than a month on Letrozole. I have been cranky and have had a short fuse with my 3.5 year old and my hubby. I now understand why naturally most women already have somewhat grown children and have been with their partner for years when they hit menopause. You need to have a solid relationship and not have a small child on you all the time. But I do...so I am dealing as best I can and my hubby is being understanding to my crazy!
For me the benefits have totally out weighed the negatives, but that isn't true for everyone. I was very nervous about going on meds, especially when there wasn't anything to say it would work. But I met with a very helpful doctor and she told me I have nothing to lose and if she was in my position she would do it. I must remember to thank her along with the doctor who sent me to the right doctor for diagnosis.
I was told if the meds don't work I could just stop them. Since I am done having kids (confirmed by my last pregnancy being so difficult due to my AA) if things didn't go back to normal it really wasn't too much of a problem, but I would have been more hesitant if I didn't have kids yet.
Hope that helps, please feel free to ask me any other questions.
hi guys, i have been on zoladex for 2 yrs now and am ok, the AA hasnt disappeared, in fact it grew very slightly at one point, however its remained stable but whether thats what would have happened with or without zoladex is anyones guess. side effects so far are being too warm most of time but flushes do get better and less frequent, my blood pressure has gone high and i had to go on meds for that, my liver readings were also high but seem to have returned to normal, my cholestrol is also now too high, i am losing a bit of weight at moment to see if that sorts that out but am not convinced it will. i have learned to live with AA but am waiting for the day that zoladex stops working as am sure it will, but AA is such a slow grower it might be that it just lingers there, who knows!
Do you remember how long into your treatment it was that it grew?
I am curious about blood pressure as mine is always very low, when I was pregnant I had trouble keeping it high enough to be in a safe range so that wouldn't be bad for me.
I have been so happy with the results in terms of appearance also, I am 5'4 and 127 lbs so with this big tumor in my abdomen I looked like I was prego again! I compared bellies with my friend who is and at 16 weeks I was bigger than her. And she's a size 2! I had a mom at my son's school touch my belly and say congratulations! ARGH!
But within the first month on Zoladex I was back into my old shorts and my fav Polo shirt I hadn't been able to wear. Too bad I went out shopping for shirts to cover my "prego" belly!
i was about a year into zoladex, maybe less, it had disappeared with tamoxifen but i also lost my ovaries due to that. i started zoladex and about a year later the AA grew to 2 cm but hasnt changed since, my tumour never grew into my abdo, it went backwards into my buttock, even rarer i believe lol
I'm sorry I'm sure you posted before but I can't remember, how big was yours before the meds? Mine was more than 12x11x19 cm (5x4.5x7.5 inches), not sure how big was the last scan but my doctor laughed when I asked and said "It's big".
Mine is not really in my abdomen anymore it seems since it has shrunk, it's in my pelvis but had grown vertically.
Aggressive angiomyxoma is a rare locally aggressive mesenchymal tumour.
The tumour infiltrates locally and has a high risk of local recurrence after excision.Recurrence may occur many years after initial resection, hence a long term follow-up is required. Recurrence of the tumour may be avoided by wide local excision.The tumour has no potential to metastasize.
