Hi again,

Lovely to hear from you and so soon! Thanks so much.

I'm really relieved and glad to read that the side effects haven't been too dreadful for you. Phew! I'm amazed you're still having your period too. It really is different with every single woman as so many of these posts prove. I'll bear in mind your advice regarding the brand, seems logical to stick to one make doesn't it? From family experience we know not all Tamoxifen are equal. My grandmother swore the earlier formula for it back in the early 80's was friendlier maybe even milder (as she was on it for 10 years post bc) when she first had it, than the later dose she had to take in the last 5 years. She deemed it fierce! 

For me it feels like the tricky bit will be sorting the wheat from the chaff. At the minute I worry I'm getting menopausal symptoms and suffer from appalling headaches and fatigue, when I'm not that old or truly going through it yet. This why I'm worrying about the Tamoxifen compounding things. Knowing what's causing what might be pretty difficult. 
Obviously it's early days for me still and I'll be seeing my consultant  in two weeks time for the biopsy results. It will be good to know the bigger picture and their plan in more detail. The pro op sketch was lumpectomy with LICAP partial reconstruction, followed by radiotherapy then Tamoxifen. However the biopsy results may change things of course. 
 

Well, I'll love and leave you. Many thanks again, it really reassuring to know your initial fears didn't bear fruit as such. Good luck and keep well,

Best wishes xx
 

Hello, I realise you posted this years ago but it sounds so similar to my case, can you tell me how things turned out? Did your girlfriend have her ovaries removed ? I'm waiting for a gynae app. to discuss my options, in the mean time I'm off the tamoxifen & back to my old self again I really can't believe what a difference it's made to my quality of life. 

Hello Lizzie.flg

I saw your post asking the boyfriend and I'm wondering too! I've been taking tamoxifen for about 3 weeks and from day 4 have had the worst stomach pain/pelvic cramps. They are low down on the left and at first my GP thought it was diverticulitis and have been on lots of antibiotics. I then thought it could be the tamoxifen! So have been told to stop it for 2 weeks to see if my pain resolves. I can hardly stand up straight at times with the pain so I hope it does too! 

Hope you're ok? 

Hi brunters,

I'm back at work & able to function like a proper human being again, however, I have a gynae app on Tuesday so I'm sure it will all change there once I have to make another difficult decision, so in the meantime i'm enjoying feeling well.

I hope you feel as well as I do off the tamoxifen as it took me much longer to realise that it was the drug that was doing so much damage, I wish you well on your journey, all the best. 

Hi Lottielot

So glad you're doing well and sound so positive. i'm booked in for surgery on 18/8 and have been told I'll be on a hormonal treatment drug probably Tamoxifen.  
 

what manufacturer did you find had the least effect on you. Appreciate that we will all react differently to the drug. I'm just worried about the fatigue side effects. 
 

wishing you all the best x

Hi Eliza,

At the moment I am taking Tillomed brand which seems to suit me fine although my pharmacy tend to give me a different brand every time despite requesting the same brand. If you read about the different brands online you will see that they do effect everyone differently so I guess just see how you get on with them. I take Biocare hair and nail complex along with Fish Oils which seems to help counteract some of the side effects. 

Hope all goes well with your surgery on the 18th- all the best!

Charlotte

Hi

I have just read your post. I too had a lumpectomy with LICAP reconstruction. I am having my radiotherapy planning appointment next week. But if all of this I am least looking forward to taking tamoxifen. I am really worried about the impact of it on me.
How have you got in with your LICAP? Did it take long for full feeling to return and the hardness to ease? 
 

hope you did ok on the tamoxifen!