Hi Marion, pleased you had a great time, minus the toe injury of course! I bet that hurt! Yes my check up went well, had the camera down and no sign of the tumour! The consultant did say that if it was to return it is 76% more likely to do so in the first two years, so i have monthly checks up til then. It was a strange feeling, i felt like saying "are you sure you looked in the right place" as it was a guy i had never seen before! he also put the camera down my left nostril not my right, as i had the tumour on the right side, those little things play on your mind, do you feel like that?

I am still struggling with fatigue, i coped so well during treatment that i expected to bounce back quickly, my occupational health people said it is far too early to go back to work, i am a postie, very physical job nowadys. I also suffer with gilberts syndrome, a mild liver dissorder, unforunately the main symptoms for that are also fatigue and my 'count' at the moment is the highest its ever been at 44, normal people this about 15-20 and i usually run at 25-30, it doesnt require any treatment, the liver just gets a little behind in processing dead red cells from the body, so they stay in the system longer than they should.

My voice i would say is pretty much back to normal as far as i can remember!! I am not getting too carried away at the moment, it is a huge relief, i think i was more pleased for my mum than for myself, but i think i will grow in confidence the more all clears i get!!

Thanks to you all for such great advice and support and i am more than happy to pass on my experiences to others who are starting out and having concerns.  Take care all. 

hi marion

thanks for your post glad you had a good holiday but for the toe!

we are going back tomorrow for the results of the last biopsy which he had 2 weeks ago. i am hoping all ok the consultant seemed v positive saying he thought it might be just a polyp here hoping!

but saying that i dont know if anyone can help but my husband seems to be getting v tired lately, hes starting to admit himself.

i know you shouldnt think too deeply into things but i cant help worrying he is also complaining of back pain,(could be me overeacting i suppose)

but we are having another cat scan on fri so this should shed some light on things!!

thanks to anybody who takes the time to read this as im probably just going on and on !

take care

love

lorna xxx

Hi Topstriker

Great news that all was well at your appointment.  Don't worry about which nostril they put the scope in as they can see the whole larynx with either nostril.  My consultant always asks me which one I prefer and funnily it seems more comfortable on the left side - that could be down to my broken nose though!  Speaking of breaks - yes my little toe is very painful and hurts with my shoes pressing against it. I'm doing a 13 mile Shine Walk for cancer research on 1 October so I'm not able to practise which is worrying!

Sorry to hear about your other illness, I have never heard of gilberts syndrome.  I know it's frustrating been so fatigued and not having a lot of energy but it's all normal and will get better over time.

I wish you well and let us know how you are getting on from time to time.

Take care

Love Marion x

Hi Lorna

I hope the results were good yesterday.  It's all such a worry waiting around for results and that could be the reason for your husband's tiredness rather than anything sinister.

It's hard not to jump to conclusions with every ache and pain - I do it myself all the time!  Any pain in my neck or hoarseness in my voice I used to automatically think the cancer had come back.

Let us know how he gets on.

Love Marion x

Hi Lona

What great news i think fear of all aches and pains is very common and your wonder if it is anything else starting up.

Hope you have a great holiday

All the best

Luckyus

Hi All, I would like to ask and find out if anyone who had radio had any issues with thyroid after treatment? When i had my first check up i mentioned my fatigue and the Doc said he would do a thyroid test and it has come back overactive? He commented that the radio to my larynx may have "drifted" and can effect the thyroid, apparantly it is not obviously diagnosed as it mirrors the side effects of radiotherapy, ie fatigue etc. But it plays a massive role in many energy systems of the body and being a regular runner it has become almost impossible. I did have a sore achey feeling down the sides of my adams apple but put that down to psychosematic stress as my first check up was looming!! not realising at the time that is where the thyroid is situated!  It is rather tender and hoping if anyone who has had similar experience of this could shed some light on it?

Hi Lorna

Great news!  You must be both so relieved.  Hope the CT scan brings good news as well.

Have a lovely holiday and hopefully you will both be able to relax now.

Keep us posted.

Love Marion x

Hi all just to let you all know my husband got the all clear again yesterday that's 10 months and counting I hope everyone else is doing ok it is so long since anyone posted god bless to you all fingers and toes crossed for us all big hugs luckyus

Hi Luckyus

That's great news - nearly at the landmark one year which is quite a milestone!  It's so nice to see you reviving this thread.

Since I last 'spoke' to you I did the half marathon Shine Walk (overnight walk) for Cancer Research and raised over £2,200 with my 2 sister in laws.  The Charity got in touch with me to ask me to go up on stage and say a few words of inspiration so that was a bit nerve racking!  I had a broken toe at the time so it was tough going but I'm so glad I did it.

My voice comes and goes (it's not good at the moment) but I try not to panic like I used to.  It's just one of those things that I am getting used to and such a small price to pay.

I hope your husband continues to keep well and keep in touch.

Love Marion x