Hi Zarker

I had severe displacia of the vocal chords around 5 years ago and was told that I needed laser treatment immediately as it "was very close to cancer". I had laser treatment a few times and had to have biopsies done around every 2 - 3 months but in my case it had gone too deep so they could only laser the surface and it kept coming back. If you are a smoker you should give it up immediately as my consultant told me to avoid smoke at all costs.

I went on to have larygneal cancer but I was stage T2-3 when I was eventually diagnosed. I was successfully treated with radiotherapy 28 months ago and touch wood everything is fine and my voice is better than it's been for years.

On a positive note they are closely monitoring you and as you are at a very early stage hopefully they will be able to get rid of it with laser treatment alone.

I wish you well and hope that the next laser treatment will be the end of it.

Marion x

Hi Marion ,

Thanks very much for your reply it was most helpful. I hope you don't mind me asking but how long was it from when they found displacia to you being diagnosed with laryngeal cancer? As this is what I think may be happening to me. They said inicially It could be treated with laser alone and after my last laser treatment yesterday that the return was on the surface only and did not warrant rdiotherapy at the moment and he had done deeper biopsys which he says hes sure arn't cancerous. This has as you know been a very difficult time for me as i'm so scared of loosing my voice or having to have a laryngectomy which I've been told is unlikely. i'm reassured to know that after your treatment your voice is now good. Thank you again and I hope you continue to do well. Andy

p,s gave up smoking 5 years ago and after this will never go back to it!

Hi Lorna

It's been a while since I logged in but just wanted to reiterate what Andy's said.  If you read Andy's thread from the beginning you will hopefully get a lot of answers about treatment etc as a few of us have been sharing experiences for a couple of years now.

I had laryngeal cancer in 2007, so it's almost at my 4 year anniversary and I'm happy to say that I still have a voice and everything is fine (touch wood).  I was being monitored for 4 years before I was actually diagnosed a T2-3.  During the 4 years prior to diagnosis I had laser treatment around 3 times and probably had about 9 biopsies taken over the years.  My consultant said at the time it may never get to the cancer stage and clear up on its own so don't worry that it automatically means cancer!

Please let us know how your husband gets on and if there's anything you want to ask in the meantime, then please ask.

Good luck and best wishes.

Marion x

thanks very much

they already said it was t 1 cancer last time around but i think since been on this forum its made me realise and answered a lot of my questions relating to my worries.

the only slight worry ive now got is the small nodule they said he had in his lung? anybody out there had a simiolar result would be grateful for any comments? they said it was small and not to worry but thats not so easy as ive also got an uncle who has undergone chemo and now starting rt on the 8th for lung cancer and has no family but us so i am also taking him on occassion to rt never mind the future can only get better

thanks xxx

Hi all

Just a quick up date my husband was back at clinic yesterday (3rd August) and we were lucky enough to get another all clear i still feel so blessed. we are always so scared that we wont  be so lucky. Have the all clear for another 3 months ten start all over again. on a good note at least we got the all clear to fly next year yeh bring it on.

Good luck to all those out there still fighting this terible disease.

Luckyus xx

Hi lucky us so glad to hear your news. I know what it's like when it's time for the check up we all get worried but it's  always such a relief when the news is good . You must be really pleased.

Hi Andy

Thanks so much yes i am so relieved and pleased he got the ok next stage is to try and get travel insurance wish me luck. I truely hope your journey continues to be all positive news..

Best wishes

Andrea

Hi Lucky us.

Nice to see that your husband has got the all clear again, I know how he feels, I went for my 4 month one and got the all clear again, not bad after 3 years since op.

About holiday insurance, I know they charge more for cancer patients I have a list off mcmillan that give address for companys that deal in cancer insurance.

I wanted insurance for a 5 day hoilday in June and I was told to try the post office, you phone them up on the number on there holiday form and answer question about the cancer and treatment.

As I am not having treatment or going into hospital, they told me I could insure with them, I took it out and it was a lot cheaper than other quotes I had got.

Hope this might help.

Joeninty.

Hi Joeninty

Thanks so much will give the post offfice a call all worth trying the best so far is world first travel but i am still looking

pleased all is still going so well for you too

Thanks again

Luckyus

     Hi all Apologies for hijacking your thread but i am two weeks post radiotherapy for t1 vocal, chord cancer, i am really struggling with my voice, and i know you all understand my frustration! what worries me though is that i coped really well during treatment, no problems eating or swallowing (i had 6 weeks radio) and coped on paracetamol and ibuprofen, but my voice is still getting worse, when after two weeks i was hoping it may at least show signs of adjusting a little even if not getting any better?

Hi Topstriker

as you can see my husband was lucky enough not to need radiotherapy but i know people who have so i am just bumping you back up until someone comes on that may be able to help.

Best of luck on your journey

Luckyus

Hi Luckyus

I just wanted to say how pleased i am your luck is holding and giving your husband lovely clear scans.I  hope you have a great holiday.My husband gets around the insurance by getting family cover via his bank.

Hi Luckyus

I just wanted to say how pleased i am your luck is holding and giving your husband lovely clear scans.I  hope you have a great holiday.My husband gets around the insurance by getting family cover via his bank.

Hi Grumpy

Yes i do believe we are one of the very lucky  ones funny i choose the name at 530am at work was so desperate for help at the time "luckyus" was a sarcastic saying as like most people i did not want to use my name but it has been lucky us so far

as for insurance i am guessing you are on about one of those do it all account i asked our bank about this and he was not covered so well done your bank.

best wishes to all

Luckyus

Hi there,

Regarding insurance I just got a basic cover and didn't mention the cancer, I think travel insurance only really covers you for things that happen to you while your there eg, accidents, lost luggage, flight cancellations etc, these things are much more of a risk  and to be honest its unlikely now that your husband is going to become ill as a result of the cancer while he's away especially as he is having clear scans.

I'm probably sounding a bit lapse but from what I have heard from people who do declare past illness's the insurance companies always find a way of not paying out and will charge you a fortune for cover, I got quotes of up to £300 for 1 week!!

Don't let what I have said sway you though, you must do what you think is right for you, its just my opinion.

Glad to hear your husband is doing so well and have a great holiday

take Care

Andy