Hi Zarker

I had severe displacia of the vocal chords around 5 years ago and was told that I needed laser treatment immediately as it "was very close to cancer". I had laser treatment a few times and had to have biopsies done around every 2 - 3 months but in my case it had gone too deep so they could only laser the surface and it kept coming back. If you are a smoker you should give it up immediately as my consultant told me to avoid smoke at all costs.

I went on to have larygneal cancer but I was stage T2-3 when I was eventually diagnosed. I was successfully treated with radiotherapy 28 months ago and touch wood everything is fine and my voice is better than it's been for years.

On a positive note they are closely monitoring you and as you are at a very early stage hopefully they will be able to get rid of it with laser treatment alone.

I wish you well and hope that the next laser treatment will be the end of it.

Marion x

Hi Marion ,

Thanks very much for your reply it was most helpful. I hope you don't mind me asking but how long was it from when they found displacia to you being diagnosed with laryngeal cancer? As this is what I think may be happening to me. They said inicially It could be treated with laser alone and after my last laser treatment yesterday that the return was on the surface only and did not warrant rdiotherapy at the moment and he had done deeper biopsys which he says hes sure arn't cancerous. This has as you know been a very difficult time for me as i'm so scared of loosing my voice or having to have a laryngectomy which I've been told is unlikely. i'm reassured to know that after your treatment your voice is now good. Thank you again and I hope you continue to do well. Andy

p,s gave up smoking 5 years ago and after this will never go back to it!

Hi Joeninty

I just knew you would be so much help even though my friend went through this i am in awe at what she must have done with out us ever knowing. you are a star

big hugs and many thanks Luckyus

Hi Mermaid 1966.

I have just sent you a long book on another thread about radio etc, I see you have a total like me, I think I will give you my email address so I talk better to you, yes I am on facebook also if you want a chat, but talking about our problem is beter on email, if you want to know more I will put my email up for you.

I didny have a lary tube in when I went home yes I had radio, a feeding tube I will have to explain why etc.

hope to hear from you

michael.summerson@tiscali.co.uk.

Hi Luckyus.

Glad to be of help, hope I am helping you as well, the op. I and a few have had isnt nice but look on the bright side I am well and hopefully helping a few more, there are a few things that I have not said but it dosnt matter it outcome is I am better do most of the things I did before.

hope to hear from you again,

michael.

hi Micheal

Funny as it is, you and the others on this post were helping me before you even new i existed i read this for weeks before joining the site. and i bet others are reading this gaining help but never knowing how to join in. I dont think andy new what he started when he posted, between you 4 that were the start of this post you have helped me so so much.

Thanks again and again i still am so grateful

Luckyus

Hi Andrea

Just a quick line as I only have my lunch break to log on as my computer at home takes an eternity to load up.  Just wanted to say that I haven't forgotten everyone and hope that the results on the 22nd are good.  What a terrible wait for you and your husband to endure.

I posted last week and for some reason I kept getting an error message so I gave up.  I must have broken the rules somehow!

I'll keep on checking your posts even if I don't get a chance to join in.

Take care,

Love Marion x

Hi Andy

Sorry I haven't been in touch, as I just said to Andrea (Luckyus) I kept getting an error message when I tried to reply to you both and I only have my lunch break to log onto this site until I get a new computer (hoping Santa might get me one)!

How's it going with the RT?  I can't remember exactly when I started to feel the side affects but it was probably after 15 sessions (which was the end of my first week as I had it 3 times a day).  It all seems like a bad dream now thinking back of lying under that mask.

I have to get back to work now but will be in touch.

Keep us updated and hope you stay well for as long as possible.

Love Marion x

Hi Marion.

I see we havent heard from you for a while, how are you keeping, we have our own club on here with all the people talking to each other and asking for advice on there problems, this cancer site is getting a mine of infomation for people to ask about we ( all of us ) hope that it is a help to people who are going nad have had treatment. I myself are keeping well at the moment but a few are having radio ETC. I like you wish them all the best, look after your self hear from you soon.

michael.

Hi Marion,

The RT is going ok, had my 7th session today and don't really feel much different but have been told side effects will kick in soon so i'm making the most of the calm before storm! Yes it is a bit weird lying under that mask and some days it seems to be tighter than others, got a cold at the moment too but guess its better to get one now than further down the line.

I think its going to be a very quiet christmas for me as I havent really been arranging things as I don't know how i'm going to feel , to be honest couldn't give a damn about christmas this year just want to get my head down and get this treatment over so I can start next year in a better place, so to speak.

Hope all is good with you and the snow isn't too bad where you are, its ok in central london just had a light dusting, lets hope it stays that way!

Thanks for your good wishes

Love Andy

Hi Michael,

Thanks for your good wishes. Looks like your doing a grand job on here offering advice and help, its good to know something good is coming out of this. you sound like a very positive person which I guess is why you are doing well after your surgery. I think being positive is the half the battle fought!

Keep up the gppd work mate

Take care

Andy

Hi Andy.

I see you have started the radio, its not as bad as they say, like I said you get tired near the end, and I found I couldnt swallow and I got a bit red, my throat got dry but I was told by someone to get artificial siliva spray off the doctor ,it worked a treat also I had a diatician who gave my drinks to take to build me up they were not bad to take.

When I went for my mask fitting there was a couple of people that couldnt stand getting one made I understand what they thought, I have got mine in the loft. how are you coping with it all. well talk to you again all the best hope you feel better.

michael.

Hi Andy.

I see you have started the radio, its not as bad as they say, like I said you get tired near the end, and I found I couldnt swallow and I got a bit red, my throat got dry but I was told by someone to get artificial siliva spray off the doctor ,it worked a treat also I had a diatician who gave my drinks to take to build me up they were not bad to take.

When I went for my mask fitting there was a couple of people that couldnt stand getting one made I understand what they thought, I have got mine in the loft. how are you coping with it all. well talk to you again all the best hope you feel better.

michael.