Hi Zarker

I had severe displacia of the vocal chords around 5 years ago and was told that I needed laser treatment immediately as it "was very close to cancer". I had laser treatment a few times and had to have biopsies done around every 2 - 3 months but in my case it had gone too deep so they could only laser the surface and it kept coming back. If you are a smoker you should give it up immediately as my consultant told me to avoid smoke at all costs.

I went on to have larygneal cancer but I was stage T2-3 when I was eventually diagnosed. I was successfully treated with radiotherapy 28 months ago and touch wood everything is fine and my voice is better than it's been for years.

On a positive note they are closely monitoring you and as you are at a very early stage hopefully they will be able to get rid of it with laser treatment alone.

I wish you well and hope that the next laser treatment will be the end of it.

Marion x

Hi Marion ,

Thanks very much for your reply it was most helpful. I hope you don't mind me asking but how long was it from when they found displacia to you being diagnosed with laryngeal cancer? As this is what I think may be happening to me. They said inicially It could be treated with laser alone and after my last laser treatment yesterday that the return was on the surface only and did not warrant rdiotherapy at the moment and he had done deeper biopsys which he says hes sure arn't cancerous. This has as you know been a very difficult time for me as i'm so scared of loosing my voice or having to have a laryngectomy which I've been told is unlikely. i'm reassured to know that after your treatment your voice is now good. Thank you again and I hope you continue to do well. Andy

p,s gave up smoking 5 years ago and after this will never go back to it!

Hi Luckyus

Thanks for your lovely reply, if I've helped in some way that's a very good feeling.

I hope you get the results back really soon and it's good news.

I'm keeping everything crossed!

Love Marion x

Hi Marion

Hospital called me back today my husbanda appointment will be the 22 Dec as he did not have a biopsy just laser treatment 2 weeks ago and the want that to heal before taking another look.

So my plan for Christmas: if its good news i am going to Party Party Party if its bad news then im still going to Party as its Christmas (MY TIME) and i think reading so many threads where people are not as lucky as i will be  to have this Christmas with their loved ones  then i shall still celebrate that. No its not my excuse to have a drink as i am tea total (apart from rum sauce that kicks a punch).

Thank you for thinking of us

Hugs

Luckyus

Hi Marion,

Almost completed my first week of RT and as expected not really feeling much different, as I'm told the side effects don't kick in for about another week, so making the most of the time and eating as much as I can while I still can!  I called chris on fri and had a long chat with him, he's doing really well and has got his voice back, it was good to put the voice to the name so to speak and he is up for a meet when I've recovered from the treatment so perhaps we could get together with him for a coffee or a glass of wine some time in the new year.

My consultant is confident about the treatment and thinks there will be some improvement in my voice afterwards so keeping my fingers crossed. I' know the next few months are not going to be easy and now is the calm before the storm so i'm bracing my self for whats to come and really looking forward to spring time! Hope all is well with you.

Love Andy

Morning Andy (Zarker)

Just wanrted to say thank you for starting this post you must realise how much good has been done by it just by how many people have read it.

Good luck with the RT and please continue to let us know what is happening and how you are getting on.

We all start on here as strangers but very quickly because people are so open and honest they soon feel like friends.

All the best with your treatment will keep reading the thread (nearly a year old now)

Hugs

Luckyus

Hi lucky us,

Its really good to hear that and I'm glad it has helped others as it has helped me. Its strange as when I first posted I  was only expecting to get perhaps one or 2 replies so I could get a bit of info from others who had the same thing and now year later and the rest is history as they say. I was surprised to see how many other people have read it so its good to see that perhaps something positive has come from our ailments.

Keeping my fingers crossed that your husbands results will be good as there's got to be at least one person on here that gets through this relatively easily so perhaps it will be him, lets hope so. Will keep you poted. Have a great w/e.

Andy

Hi michael,

Thanks for your message. Have almost completed the first week of RT and not really feeling anything yet as its early I guess, think in another week will start getting side effects. As you say its not too bad once you get used to the mask and all the staff and facilities at the hospital are very good so I'm in good hands. Will keep you posted on how I get on. Have a great w/e.

Andy

Hi Zacker.

I see you have started radio how may weeks are you having it for, like I said the down fall of it is that you get tired as it goes on but it will pass, wher are you having it,look after your self.  keep in touch and let me know if you would like help with anything.

michael.

Hi Luckyus.

How is you husband any news yet, I know the waiting is the worse bit not knowing, I went to the hospital yesterday to talk to students that are in the second year of radiotheraopy doctors to talk about what we had and what we thought that could be done from them to make it better for the patients, we were asked by the cancer in wales to give this talk about what I thought could be changed from the patients point of view, at the end one of the doctors passed out didnt know I had that effect on people ( joke ).

I think it is talking about what I had gone through that upset her, its nice to know they have the same feelings as me.  hope other people read this and see that some future doctors are interested.

Let me know how your husband is getting on, there is always people on here that care.

michael. 

Hi Joeninty

So nice to hear from you again.

my husband waits until 22 Dec before we know more found ut yesterday he did not have a biopsy just laser

what a good thing there are people like you to talk to students so that they do realise this is happpening to real people and their familys good on you.

I am very lucky in having loving family and friends but sometimes i feel as thoguh i dont want to burden them with my thoughts on here you can say exactly what you need to and know people (like you) care

Thank you my stranger friend. our paths have crossed for i dont know how long but i am so grateful to have you to type to

Luckyus

Hi Luckyus.

Why have you got to wait so long for the results, when I had my laser I only waited 2 weeks before they told me what had happened. where in the country do you live it seems that different places have different ways of doing things, how does your husband feel is he better or is it getting him down, all you can do is be there for him and give lots of love. The thing about this site is there is always someone to talk to, as it isn't the best of topics to talk about. when I had my major op, it helped to talk to someone that had the same as me and seeing how he was then. look after youself tell him we are thinking about him. keep in touch.

michael.

Hi Luckyus.

Why have you got to wait so long for the results, when I had my laser I only waited 2 weeks before they told me what had happened. where in the country do you live it seems that different places have different ways of doing things, how does your husband feel is he better or is it getting him down, all you can do is be there for him and give lots of love. The thing about this site is there is always someone to talk to, as it isn't the best of topics to talk about. when I had my major op, it helped to talk to someone that had the same as me and seeing how he was then. look after youself tell him we are thinking about him. keep in touch.

michael.

Hi Michael

We live in Lincolnshire and we have to wait as they didn't do a biopsy so they have to wait until the scaring from the laser is healed so the can make sure there is nothing left i rang hospital last week and the secetery spoke to the consultatnt who told us this.

His throat is still very sore but he is doing ok he went back to work a few days after the op and although he feels more tired (and grumpy) hes ok

This is such a great site as you are talking to people who really understand (unfotunatly for them). I appreciate you thinking of us but if i told him he would just laugh at me. he burries his head in the sand and i want to know it all (oppisites attract and all that).

Thinking about you too thank you for all your help

Luckyus