vocal chord cancer (T1) laser treatment, need advice

Have had laser surgery in sept for early vocal chord t1 cancer and was told it was successful but a month ago I had a check up which revealed there has been a reacurrance ( though only small and on the surface) so have had more laser surgery in the hope that will do the trick as the surgeon says its too small to warrant radiotherapy. Has anyone else had this kind of treatment and is this usual?( reacurrance and more lasering). I'm very concerned that this treatment may not be working or that cancer may keep coming back, resulting in radiotherapy and the possibility of eventually loosing my voice box. I know its early days and I'm probably worrying too much but would be very grateful if there is anyone out there who can comment on this.

Parents
  • Hi Zarker

    I had severe displacia of the vocal chords around 5 years ago and was told that I needed laser treatment immediately as it "was very close to cancer". I had laser treatment a few times and had to have biopsies done around every 2 - 3 months but in my case it had gone too deep so they could only laser the surface and it kept coming back. If you are a smoker you should give it up immediately as my consultant told me to avoid smoke at all costs.

    I went on to have larygneal cancer but I was stage T2-3 when I was eventually diagnosed. I was successfully treated with radiotherapy 28 months ago and touch wood everything is fine and my voice is better than it's been for years.

    On a positive note they are closely monitoring you and as you are at a very early stage hopefully they will be able to get rid of it with laser treatment alone.

    I wish you well and hope that the next laser treatment will be the end of it.

    Marion x

  • Hi Marion ,

    Thanks very much for your reply it was most helpful. I hope you don't mind me asking but how long was it from when they found displacia to you being diagnosed with laryngeal cancer? As this is what I think may be happening to me. They said inicially It could be treated with laser alone and after my last laser treatment yesterday that the return was on the surface only and did not warrant rdiotherapy at the moment and he had done deeper biopsys which he says hes sure arn't cancerous. This has as you know been a very difficult time for me as i'm so scared of loosing my voice or having to have a laryngectomy which I've been told is unlikely. i'm reassured to know that after your treatment your voice is now good. Thank you again and I hope you continue to do well. Andy

    p,s gave up smoking 5 years ago and after this will never go back to it!

  • Hi Marion

    will keep you informed he is going for laser and biopsy on 10 november.

    I hope you had a good trip.

    i am a realist, but also my glass is always half full, so i live in hope i needed to know the good the bad and the ugly and i am gratefull you all told me honestly without even knowing it. i started reading the first day we were told it was the dreaded C word. i am sure so many more people read and do not post it feels like stepping on a private conversation but i needed you to know how helpfull you all were.

    Thank you

    Lucky us

  • Hi Andy

    Thank you for your kind reply, i have gone on this site every day since we found out. in perticular this post ( as it was so relevant) i am a get the knowledge person and my husband puts his head in the sand ony asking me the odd question.

    Although he is at the very early stage and i am so gratefull it was diagnosed early i do realise we are on a long long road for a few years now. and through reading this post i have gained so much knowledge about the treatments.

    Thanks again

    Lucky us

  • Really glad to hear we have been of some help. The last few days have been difficult and your posts have cheered me up, just knowing that someone else has benefitted from what we write here, its good to see something positive has come from it. Please feel free to read the posts and comment and keep us up to date on your husbands progress.

    All the best

    Andy

  • Hi Luckyus

    It's great that you are a realist, I am the other way round with the glass half empty! Your husband is very fortunate to have you there for him to face the facts but at the same time being positive. I am sure he will be fine as I was a T3 when I started my treatment and I am 3 years post -treatment, disease free (touch wood!) and my voice back to normal.

    I'm so glad you have been reading our posts and that it has helped you have a better understanding of laryngeal cancer. My daughter's friend aged just 30 has just been diagnosed with the same and is waiting to start her treatment next month. I am going to meet her next week as she wants to ask lots of questions and I hope that I will be able to reassure her.

    Please let us know how your husband gets on after 10 November and remember we are here for you.

    Take care

    Marion x

  • Hi Andy

    I'm thinking of you. Let me know how you got on today when you get a chance!

    Love Marion x

  • Thanks Marion that means a lot, i'm absolutely dreading it, as i fear its bad news, but guess i just have to take what comes and make the best of it, feels like i'm walking to the scaffold! keeping fingers and toes crossed

    Andy x

  • HI Andy

    I'll be thinking of you and keeping everything crossed making typing very difficult!

    I'll check later to see how you are. I have to log off now as I'm at work and my lunch break is over.

    Try not to worry

    Marion x

  • Th Marion my appt is at 3pm will let you know later. x

  • Hi Zacker.

    Hope you get the best results that you want. I being at the end of all this treatment had numerous operations and are free of throat cancer for 2 years, I went through all the same things that you and all people like us are feeling, treatment is a lot better than it used to be, I read the post from luckyus but dont know what problem her husband has.

    As you know my cancer was T4 but I had a good surgeon as it is he has just retired, I must have been to much for him (joke).

    I will be thinking about you and all the people that come on here. let me know what they say.

    Regards

    Joeninty.

  • Hope all went as good as it can do for you today and your fears were wrong thinking of you

Reply Children
  • Hi thanks for your kind message its good and bad news as you will see from my post to marion. Will keep you up to date on my progress. Hope your not reading this and thinking oh god all this is going to happen to us as I'm sure it won't.I just think i've been unlucky in terms of the laser treatment not working and remember everyone responds differently to treatment. I'm sure your husband will be fine with laser alone. All the best for his treatment and keep us posted on how he is getting on.

    Best Wishes to you both

    Andy

  • Hi Zarker

    This is the problem with cancer there is no easy answers i am sorry you got such good and bad news yesterday .i have read this whole post through many times before even registering and its the open honestness that i needed i also know every persons journey is different and we will see where our journey takes usgood and bad.

    thank you for taking the time to reply life is so busy and you are all going through so much i am just so gratefull to have a place to "talk"

    thanks Luckyus