I don't believe it! Just found out I have blood cancer

Hello everyone. I'm new here!

I went to the doctor with chest pain. He suspected a blood clot - I had recently flown - and sent me straightaway to hospital. I returned next day for a CT scan. No clots but dodgy lymph nodes. Nice discussion with lovely doctor. But next day I get a phone call confirming I have a blood cancer. I am floored and my poor husband is also. I have had MGUS monitored for about 5 years, but it's not connected, I'm told. I'm waiting for more info and a clinic appointment.

  • Hi Sudoku,

    Welcome to Cancer Chat.

    I'm sure this must have been a shock and a lot to process - I hope you are getting on OK. I also hope it's not long to wait until your appointment to get the information you need - this may help a little in terms of understanding what to expect.

    I wanted to send a reply to your post to give it a little boost, so a few more people should see it and hopefully you'll get more replies.

    You are also welcome to give our nurses a call if you'd like to talk to someone. You can reach them on freephone 0808 800 4040 - Monday-Friday, 9-5.

    We're always here for support whenever you need it.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator

  • Thank you Ben. It's just so unexpected. I've been wondering whether to see a doctor about IBS or a knee replacement - i never thought i would be discussing this! I have another blood test this week, then the consultation next week. I have a phone number for a specialist nurse, and I did get a call back yesterday when she talked to me and explained a bit more. But i still can't really take it in, and think there must be a mistake. It's very complicated. My mother had myelodysplasia which eventually caused her death, with much discomfort and difficulty for her. I think i feel guilty still for not pushing for better care for her - she was in a general ward for 3 months at the end and they assured me she was getting the same care and treatment, but I wanted her to be in Hospice. I don't know. So many feelings.