Hi,

im a 58 yr old man who has just been diagnosed with CMML 

I live in the UK, with my wife of 33 years, and have 3 boys (26-31) who are spread out across the world (Scotland, Australia and one at home)

I have so. Many questions following the diagnosis on Friday, som the Macmillan nurses will be busy with me !

in addition to th CMML, I have a pacemaker, and also secondary Polycythemia Vera which the consultant says is caused by sleep Apnoea. I have a cpap machine for that but it’s not helping!

all in all, a but of an anomaly 

Not convinced about the diagnosis as haven’t had the biopsy results explained (yet) and the monocyte count which seems to be the key argument for CMML Are all explainable due to infections over the last six years, including the most recent blood test which has had the lowest monocyte count at 0.97, With a throat infection!

Like others, I am on a watch and wait protocol, Although slightly concerned as the consultant does not want to treat the high blood cell count with venesection, which I Would have hoped would have reduced the monocyte count at the same time

Look forward to hearing from both of you over the next few weeks